FAMILY STORIES

 

My Letter To John

This is Carolyn's story and her letter to her beloved husband John, who died of CJD. John wanted to know what he was suffering from when he was ill, but Carolyn had no idea. Now she wants to tell him and explain in this letter.

Written by Carolyn Weepers. Edited by Amy Willesee.

You can download My Letter To John as a PDF file here.

 

No White Flags

In loving memory of Helen Ferry.

You can download No White Flags as a Word DOC file here.

 

Mandy's Story

This is Mandy’s story. It details the journey through her father’s fCJD experience. Written with a deep love and respect for her father, it highlights her personal feelings, thoughts and beliefs as she and her family cared for her father in his final months and experienced his death on August 23rd, 2004.

You can download Mandy's Story as a PDF file here.

 

Ruth's Story

This is a very personal piece of writing consisting of a diarised account of the last 2 weeks of Graham Brown's life as experienced by his wife Ruth.

You can download Ruth's Story as a PDF file here.

 

PUBLISHED ARTICLES

All About My Mother

Amy Willesee's article published in the Good Weekend, Sydney Morning Herald on 16th February 2008.

You can download Amy's article as a PDF file here.

 

The Lethal Gene

Published in the Sydney Morning Herald on 24th October 2005 – author ‘Jennifer Cooke’: Download here

 

Catherine's Story

This is Catherine's story published in Dean Lecture Series, Faculty Of Medicine, Dentistry & Health Sciences- University of Melbourne.

'Debate in Human Genetics' The Brave New World of Genetic Testing.

You can download Catherine's Story as a Word DOC file here.

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