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Links to Related Sites

For a broader view of CJD generally, these sites might be useful. We do not necessarily endorse the information they provide.


General information sites

Better Health Channel - Victorian Department of Human Services
A good site to visit for information on all types of Creutzfeldt Jakob Disease.

NSW Health - Creutzfeldt-Jakob disease (CJD) fact sheet


Australian Site with information for clinicians

Australian National CJD Registry (ANCJDR)

Australian national surveillance and diagnostic centre for CJD and related prion diseases.

ANCJDR 2012 surveillance report published June 2013

Link to surveillance data on CJD and other prion diseases in Australia


CJD Infection Control Guidelines - published January 2013

See our Infection Control Guidelines section for more information for health care professionals, admission staff and consumers.


Royal Prince Alfred Hospital - Department of Neuropatholgoy - Creutzfeldt-Jakob Disease Laboratory
The RPA Neuropathology Department is the NSW state referral centre for all suspected clinical cases of Transmissible Spongiform Encephalopathies (TSE’s) that included Creutzfeldt-Jakob disease (CJD), Fatal Familial Insomnia (FFI), Gerstmann–Sträussler–Scheinker (GSS) and variant CJD. We work closely with the Department of Forensic Medicine at Glebe, the NSW Ministry of Health and the Australian National CJD registry at the University of Melbourne.

For information on autopsies for suspected CJD patients in NSW. click Royal Prince Alfred Hospital Department of Neuropathology -

See "Information for clinicians" under the "Our Services" tab - or click Information Sheet for clinicians referring potential CJD cases re potential post examination of cases of Creutzfeldt-Jakob disease in NSW.



Overseas Sites

National CJD Research and Surveillance Unit - UK
This is a good source of up-to date UK statistics and background information. It's more focused on vCJD than other types.

EUROCJD - European Creutzfeldt Jakob Disease Surveillance Network


For information on the CJD International Support Alliance and links to support networks and foundations around the world go to CJD International Support Alliance link.



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