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Monthly Archives

June 2017

Tedx Talk- Dr. Valerie Sim, how her curiosity brought her to discover a new way to bring science to a deeper level.

By News, Presentations

This is just brilliant and comes from a lady who is a clinician and also a prion disease researcher and plays the fiddler like you would not believe. Dr. Valerie Sim is also a member of the Friends and Advisors Group of the CJD International Support Alliance and Medical Director of the Canadian CJD Association so is dedicated to assisting patient associations and CJD patients and families. This is the calibre of researchers we are so lucky to know are working hard to find a treatment or cure for this devastating disease called CJD or prion disease.

This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at

Winners of CJD Raffle held in Loving Memory of Mario Papalia

By Fundraising, News

Congratulations to the prize recipients of the CJD Raffle held in Loving Memory of Mario Papalia.

  • 1st Prize- Julie Mortimer, West Perth
  • 2nd Prize- Stewart Title, Victoria Park
  • 3rd Prize- Joe Versaci, Osborne Park

We would like to extend our most sincere gratitude to our family and friends for their continued support and generosity as we strive to find a cure for this disease.

The raffle raised $14,950.00 which is evidence that Mario’s generous spirit now lives on in all of those that had the privilege of knowing him.

Thank you to the sponsors that donated amazing prizes and a big thank you to Poppy’s Crusade and the Farlekas family for their assistance with making this raffle the success that it was.

Marie Papalia and family.

City2Sea 2017

By Events, Fundraising, News

Date announced for the City2Sea in Melbourne is Sunday, 12th November 2017.

Unfortunately it is the weekend before our conference but it does fall exactly on CJD International Awareness Day 12th November. Please save the date and join us again this year to promote awareness of CJD and prion disease and raise funds for our research teams.

CJDSGN T-shirts available for all who participate. Please let us know if you are coming along and start now by setting up your fundraising page.

Head to our City2Sea event page for more information.