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Facebook – Join the CJD Support Group Network

By 01/07/2015September 7th, 2015News

We have started a CJD Support Network Group in addition to our Facebook page, and you are all invited as family members and friends to join this group to share personal stories and offer mutual support. This is a closed group as our aim is to provide a safe environment for support and sharing. This is a group for those personally affected by CJD and other prion disease and those of you who are members of this site already I know you will support new families members who unfortunately will continue to join our ‘family’.

We look forward to welcoming you all to the CJDSGN group page!


  • Helen Zlowrey says:

    My name is Helen Lowrey, my sister Jacqueline Birmingham,
    My Mother was recently , diagnosed With probable Sporadic CJD
    We are iMarin county , California
    There is no support group.
    We would be interested to get information and feed back and experiences of other people who are dealing with this devastating disease .

    Thank you !
    Helen Lowrey
    Jacqueline Birmingham

    • admin says:

      Hi Helen, I apologise for the delay in responding but we have had issues with our website. As you are in USA I suggest that you contact the CJD Foundation who provide support and assistance for all affected by CJD and other prion disease in USA.