CJDSGN Family Meeting- Perth

By 31/01/2019 Meetings

You are invited to attend a CJD Support Group Network (CJDSGN) family meeting.

Date: Saturday 23rd February, 2019

Time:  2pm to 5.30pm – afternoon tea will be provided

VenueMantra on Hay

Address: 201 Hay Street, East Perth WA

Telephone No: 08 9267 4888

RSVP: Thursday 21st February, 2019 
email: s.solvyns@cjdsupport.org.au or call the toll free number 1800 052466
Final numbers will be required for catering purposes by this date.

Hosted by:  Suzanne Solvyns and David Ralston – representing the Committee of the CJD Support Group Network. 

This meeting is an informal meeting where you will have the opportunity to ask any questions, share your stories with other family members who understand the difficult journey called CJD and link in with other family members for mutual support.

For those of you who have attended meetings and conferences in the past we hope that you will also come along to help us to support the new families who unfortunately continue to have their lives touched by this monster of a disease.

This is also a great opportunity to get some feedback from the 11thannual national CJD conference if you were unable to attend and an update on some initiatives we are working on for genetic testing and to assist with infection control issues.

The 1800 052466 will be diverted to my mobile in case you need to make contact on the day of the meeting.