Ionis Community Statement – Clinical trials

By Suzanne09/04/2021News

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Prion Disease Community Statement 4.7.21.pdf

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CJD Support Group Network

1 month ago

www.somagnews.com/what-do-we-know-so-far-about-the-mysterious-brain-disease/ ... See MoreSee Less

What Do We Know So Far About The Mysterious Brain Disease? - Somag News

www.somagnews.com

Brain: In recent months, 48 cases of a neurological syndrome of unknown origin have been identified in New Brunswick, Canada. Patients presented diverse

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CJD Support Group Network

1 month ago

Here is your chance to help towards a treatment or cure for prion disease. Ionis Pharmaceuticals, a company based in Carlsbad, California US that develops antisense drugs targeting the RNA. In the past, Ionis has successfully developed antisense drugs that treat diseases such as Spinal Muscular Atrophy and TTR Amyloidosis. they are working on doing the same for prion disease.they are currently undertaking a survey on genetic testing for prion diseases (PRNP testing) and we ask anyone from a genetic prion disease family or anyone who has undergone or considered genetic testing to please complete the survey provided in the link below. clarityco.qualtrics.com/jfe/form/SV_eIO0ze2ua5kyT0q?wave=2 Your help would be very much appreciated ... See MoreSee Less

Qualtrics Survey | Qualtrics Experience Management

clarityco.qualtrics.com

The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.

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CJD Support Group Network

1 month ago

UPDATE: You can use this same Scheme ID in QUEENSLAND as well.Thank you Kristen Turner in WA for setting this up to raise funds for CJD research in Australia.In Western Australia and Queensland when you recycle with Containers for Change, you receive a 10 cent refund for every eligible container you return. We have registered our own ID, so when this ID is used your money will be donated straight to the CJDSGN! Start recycling WA and Queensland every little bit counts! ... See MoreSee Less

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CJD Support Group Network

2 months ago

In Western Australia and Queensland when you recycle with Containers for Change, you receive a 10 cent refund for every eligible container you return. We have registered our own ID, so when this ID is used your money will be donated straight to the CJDSGN! Start recycling WA and Queensland every little bit counts! ... See MoreSee Less

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CJD Support Group Network

2 months ago

www.prionalliance.org/2021/06/07/mid-year-update-2021/?fbclid=IwAR24tH_2YXOKctGwiIJ9HgkIslThsNU6r... ... See MoreSee Less

Prion Alliance mid-year update 2021

www.prionalliance.org

Prion Alliance is a 501(c)(3) non-profit devoted to funding research towards a treatment or cure for human prion disease.

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Ionis Community Statement – Clinical trials

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