Categories – CJD Support Group Network Australia

2 months ago

Today, scientists from Parkville came together at The Florey wearing orange for International CJD Awareness Day. This important day raises awareness of Creutzfeldt-Jakob disease and shows support for those affected 🧡As the main hub of CJD and human prion disease research, The Florey is proud to be home to the Australian National CJD Registry (ANCJDR). Thank you to our collaborators and supporters who help make this research possible. 🔗 Learn more about The Florey's work on the ANCJDR: florey.edu.au/our-research/scientific-facilities-and-research-services/australian-national-cjd-re...#CJD #CJDAwareness #TheFlorey #ANCJDR #CreutzfeldtJakobdisease ... See MoreSee Less

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CJD Support Group Network

2 months ago

On International CJD Awareness Day share this post to provide some knowledge about this disease with your contacts by sharing this link.https://www.youtube.com/watch?v=BPy_dscGJno ... See MoreSee Less

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CJD Support Group Network

2 months ago

On International CJD Awareness Day - 12th November - Remembering our Australian loved ones lost to this devastating diseasehttps://www.cjdsupport.org.au/memorial-wall-2025/ ... See MoreSee Less

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CJD Support Group Network

2 months ago

Tomorrow is International CJD Awareness day. Don't forget to wear your CJD shirts, pins or just something Orange to raise awareness about this devastating disease, that has touched us all in some way.We've had a busy few weeks the Australian Annual CJD Conference was held in Melbourne on the 25th October and was well attended by families and professionals alike. With some great information and very positive research and drug development going on.The first ever conference was also held in New Zealand on the 1st November in Auckland, congratulations to the New Zealand group for this initiative. Thankyou to all the researchers and professionals who presented, we are very lucky to have such loyal and dedicated people working so hard for CJD families.Some photos from the Melbourne conference. ... See MoreSee Less

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CJD Support Group Network

4 months ago

Such a privilege to be invited to attend this tribute yesterday to an amazing man and such an honour to have met and known Professor Michael Alpers. For many of us, who had the opportunity to hear him share his stories of kuru and his love of 'his family' in Papua New Guinea, his legacy to the prion community and so many other communities will live on in our hearts. Rest in peace Papa Michael!!! ... See MoreSee Less

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