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CJDSGN Zoom Meeting 23/10/21

By Events, Meetings, News

You are invited to attend a CJD Support Group Network (CJDSGN) Zoom meeting.

  • Date:  Saturday 23rd October 2021
  • Time:  2:30pm- 4:30pm (AEST)
  • Please email contactus@cjdsupport.org.au to register your interest.
  • Attendees will receive the login link by Monday 18th October 2021

Hosted by:  Suzanne Solvyns and David Ralston representing the Committee of the CJD Support Group Network.

Guest Speakers: Dr Christiane Stehmann and Dr Matteo Senesi – Australian National CJD Registry (ANCJDR).  ‘An update on surveillance, research and improvements to diagnostic tests in particular RT-QuIC’.

There will also be an update on AOS clinical trials that are due to commence in 2022.

There will be time allocated for Questions and Answers during the second half of the meeting. If you have specific questions you can email and register your question ahead of time so that we can ensure that you do get answers to any questions.

CJDSGN Zoom Meeting 28/08/21

By Events, Meetings, News

You are invited to attend a CJD Support Group Network (CJDSGN) Zoom meeting.

  • Date:  Saturday 28th August 2021
  • Time:  2:30pm- 4:30pm (AEST)
  • Please email contactus@cjdsupport.org.au to register your interest.
  • Attendees will receive the login link by Monday 23rd August 2021

Hosted by:  Suzanne Solvyns and David Ralston representing the Committee of the CJD Support Group Network.

Guest Speakers: Dr Christiane Stehmann and Dr Matteo Senesi – Australian National CJD Registry (ANCJDR).  ‘An update on surveillance, research and improvements to diagnostic tests in particular RT-QuIC’.

There will be time allocated for Questions and Answers during the second half of the meeting. If you have specific questions you can email and register your question ahead of time so that we can ensure that you do get answers to any questions.

CJDSGN Family Meeting- Melbourne

By Events, Meetings

You are invited to attend a CJD Support Group Network (CJDSGN) family meeting.

    • Date: Saturday 29rd February, 2020
    • Time:  2pm to 5.30pm – afternoon tea will be provided
    • VenueJasper Hotel                                                       
    • Address: 489 Elizabeth Street, Melbourne VIC 3000
    • Telephone No: (03) 83272727
    • RSVP: Thursday 27th February, 2020 
    • email: s.solvyns@cjdsupport.org.au or call the toll free number 1800 052466.                                                                                                                 Final numbers will be required for catering purposes by this date.

Hosted by:  Suzanne Solvyns and David Ralston and CJD family representatives on the Committee of the CJD Support Group Network.
Special Guest: Dr Christiane Stehmann, Australian National CJD Registry.

This meeting is an informal meeting where you will have the opportunity to ask any questions, share your stories with other family members who understand the difficult journey called CJD and link in with other family members for mutual support.

For those of you who have attended meetings and conferences in the past we hope that you will also come along to help us to support the new families who unfortunately continue to have their lives touched by this monster of a disease.

For those who could not join us for the 12th Annual National CJD Conference this is a good opportunity to get an update on prion disease research in Australia and around the world.

The 1800 052466 will be diverted to my mobile in case you need to make contact on the day of the meeting. 

CJDSGN Meeting- Brisbane

By Events, Meetings, News

You are invited to attend a CJD Support Group Network (CJDSGN) meeting.

  • Date: Saturday 1st February, 2020
  • Time:  2pm to 5.30pm – afternoon tea will be provided
  • VenueSoda Apartments
  • Address: 27 Cordelia Street, South Brisbane
  • Telephone No: 07 3844 9988
  • RSVP: Thursday 30th January, 2020. Final numbers will be required for catering purposes by this date.
  • email: s.solvyns@cjdsupport.org.au or call the toll free number 1800 052466
  • Hosted by:  Suzanne Solvyns and David Ralston – and members of the Committee of the CJD Support Group Network. 

This meeting is an informal meeting where you will have the opportunity to ask any questions, share your stories and link in with others for mutual support.

We will also be providing an update on project designed to assist ‘at risk of CJD’ individuals and CJD patients and their families.

This is also a great opportunity to get some feedback from the 12th annual national CJD conference if you were unable to attend.

The 1800 052466 will be diverted to my mobile in case you need to make contact on the day of the meeting. 

CJDSGN Meeting- QLD

By Events

You are invited to attend a CJD Support Group Network (CJDSGN) meeting.

Hosted by:  Suzanne Solvyns and David Ralston – representing the Committee of the CJD Support Group Network.

This meeting is an informal meeting where you will have the opportunity to ask any questions, share your stories with other family members who understand the difficult journey called CJD and link in with other family members for mutual support.

For those of you who have attended meetings and conferences in the past we hope that you will also come along to help us to support the new families who unfortunately continue to have their lives touched by this monster of a disease.

This is also a great opportunity to get some feedback from the 11th annual national CJD conference if you were unable to attend.

Date: Saturday 15thDecember 2018

Time:  2pm to 5.30pm – afternoon tea will be provided

VenueCentral Dockside Apartment Hotel

Address: 44 Ferry Street, Kangaroo Point QLD

Telephone No: 07 3891 6644

RSVP:   Thursday 13th December 2018

Final numbers will be required for catering purposes by this date.

Email: s.solvyns@cjdsupport.org.auor call the toll free number 1800 052466

The 1800 052466 will be diverted to my mobile in case you need to make contact on the day of the meeting.