Raising money for the CJDSGN who support families & friends of patients suffering with CJD and other prion disease and those at increased risk of developing CJD in Australia.
Proceeds from ticket sales, raffles & auction items will be donated to the CJDSGN to support a research grant.
To donate in memory of Frances ‘Fluffy’ Cleal, click here.
To purchase a ticket for the Fluffy Charity Ball, click here.
You are invited to attend a CJD Support Group Network (CJDSGN) Zoom meeting.
- Date: Saturday 23rd October 2021
- Time: 2:30pm- 4:30pm (AEST)
- Please email contactus@cjdsupport.org.au to register your interest.
- Attendees will receive the login link by Monday 18th October 2021
Hosted by: Suzanne Solvyns and David Ralston representing the Committee of the CJD Support Group Network.
Guest Speakers: Dr Christiane Stehmann and Dr Matteo Senesi – Australian National CJD Registry (ANCJDR). ‘An update on surveillance, research and improvements to diagnostic tests in particular RT-QuIC’.
There will also be an update on AOS clinical trials that are due to commence in 2022.
There will be time allocated for Questions and Answers during the second half of the meeting. If you have specific questions you can email and register your question ahead of time so that we can ensure that you do get answers to any questions.
You are invited to attend a CJD Support Group Network (CJDSGN) Zoom meeting.
- Date: Saturday 28th August 2021
- Time: 2:30pm- 4:30pm (AEST)
- Please email contactus@cjdsupport.org.au to register your interest.
- Attendees will receive the login link by Monday 23rd August 2021
Hosted by: Suzanne Solvyns and David Ralston representing the Committee of the CJD Support Group Network.
Guest Speakers: Dr Christiane Stehmann and Dr Matteo Senesi – Australian National CJD Registry (ANCJDR). ‘An update on surveillance, research and improvements to diagnostic tests in particular RT-QuIC’.
There will be time allocated for Questions and Answers during the second half of the meeting. If you have specific questions you can email and register your question ahead of time so that we can ensure that you do get answers to any questions.
You are invited to attend a CJD Support Group Network (CJDSGN) family meeting.
-
- Date: Saturday 29rd February, 2020
- Time: 2pm to 5.30pm – afternoon tea will be provided
- Venue: Jasper Hotel
- Address: 489 Elizabeth Street, Melbourne VIC 3000
- Telephone No: (03) 83272727
- RSVP: Thursday 27th February, 2020
- email: s.solvyns@cjdsupport.org.au or call the toll free number 1800 052466. Final numbers will be required for catering purposes by this date.
Hosted by: Suzanne Solvyns and David Ralston and CJD family representatives on the Committee of the CJD Support Group Network.
Special Guest: Dr Christiane Stehmann, Australian National CJD Registry.
This meeting is an informal meeting where you will have the opportunity to ask any questions, share your stories with other family members who understand the difficult journey called CJD and link in with other family members for mutual support.
For those of you who have attended meetings and conferences in the past we hope that you will also come along to help us to support the new families who unfortunately continue to have their lives touched by this monster of a disease.
For those who could not join us for the 12th Annual National CJD Conference this is a good opportunity to get an update on prion disease research in Australia and around the world.
The 1800 052466 will be diverted to my mobile in case you need to make contact on the day of the meeting.
