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Fundraising Event – CJD ‘Fluffy Charity Ball’, Brighton VIC

By Events, Fundraising

Raising money for the CJDSGN who support families & friends of patients suffering with CJD and other prion disease and those at increased risk of developing CJD in Australia.

Proceeds from ticket sales, raffles & auction items will be donated to the CJDSGN to support a research grant.

To donate in memory of Frances ‘Fluffy’ Cleal, click here.

To purchase a ticket for the Fluffy Charity Ball, click here.

Cocktails, Canapés and Comedy for CJD Research

By Events, Fundraising, News

In Memory of Jenny Duckworth

After raising $18k last year for CJD research, this year the Duckworth family are aiming to raise $50k to fund local researchers in Australia.

CJD is a rare, degenerative and fatal brain disease, that affects 2 in a million people every year.

Due to the rarity and aggressive nature of this disease, funding for research is sadly limited to donations.

Since losing mum Jenny Duckworth to CJD in 2016, her children have inspired a vision that no other family will have to go through what they did.

Please join them on Saturday 17th November as they host a night of cocktails, canapés and comedy, to raise much needed funds for CJD research.

To find out more about the event and purchase tickets, click here.

To donate in memory of Jenny Duckworth, click click here.


Winners of CJD Raffle held in Loving Memory of Mario Papalia

By Fundraising, News

Congratulations to the prize recipients of the CJD Raffle held in Loving Memory of Mario Papalia.

  • 1st Prize- Julie Mortimer, West Perth
  • 2nd Prize- Stewart Title, Victoria Park
  • 3rd Prize- Joe Versaci, Osborne Park

We would like to extend our most sincere gratitude to our family and friends for their continued support and generosity as we strive to find a cure for this disease.

The raffle raised $14,950.00 which is evidence that Mario’s generous spirit now lives on in all of those that had the privilege of knowing him.

Thank you to the sponsors that donated amazing prizes and a big thank you to Poppy’s Crusade and the Farlekas family for their assistance with making this raffle the success that it was.

Marie Papalia and family.

City2Sea 2017

By Events, Fundraising, News

Date announced for the City2Sea in Melbourne is Sunday, 12th November 2017.

Unfortunately it is the weekend before our conference but it does fall exactly on CJD International Awareness Day 12th November. Please save the date and join us again this year to promote awareness of CJD and prion disease and raise funds for our research teams.

CJDSGN T-shirts available for all who participate. Please let us know if you are coming along and start now by setting up your fundraising page.

Head to our City2Sea event page for more information.

Fundraising Raffle

By Fundraising

The Papalia family in WA has organised a raffle to raise funds for CJD research in Australia.

This family lost a husband, father and grandfather to this devastating disease in late 2015 and have been raising funds and promoting awareness since that time.

Tickets are now on sale and $5.00 could win you one of three fantastic prizes.

Please call Maria on 0412905588 if you would like to purchase some tickets, or even better sell a book, to assist this fantastic cause.

All proceeds raised will go to the CJD Support Group Network and every cent will be directed to support research of CJD and other prion diseases in Australia.

Thank you to Poppy’s Crusade for assisting the family with this fundraiser.

Sue’s Angels run 2016 Gold Coast Marathon

By Events, Fundraising

Join Sue’s Angels and participate in the 2016 Gold Coast Marathon on the 2nd and 3rd of July, 2016.

Participate in the full marathon, half marathon, 10km or 5.7km run, sporting team shirts to raise awareness for the rapidly debilitating Creutzfeldt-Jakob Disease that so sadly cut Sue’s life short on March 25th 2015.

Sue lost her life to this horrible disease, yet so little is known about CJD. It is a one in a million terminal Prion Disease that rapidly attacks the brain and has no treatment and no cure. It stole Sue from us so traumatically just 2 short weeks after diagnosis.

The family and friends of Sue plan to take part in the 2016 Gold Coast Marathon to raise much needed funds to help find a cure and to help prevent other people’s lived being cut short from Creutzfeldt-Jakob Disease.

Get a group of friends together to start training and fundraising!

For more information, please visit the Sue’s Angels Facebook pagenews_suesangels1