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Good News – Clinical Trial Update for Prion Diseases (Dec 23)

By News, Research

Post by Eric Minikel from Prion Alliance:
First details of Ionis trial disclosed


The Ionis Clinical Trial is posted on the clinical trials website.

Here is the link:  A Study to Assess the Safety, Tolerability, Pharmacokinetics and Pharmacodynamics of ION717

The current status is “not yet recruiting”. Even though no sites are open, this is a normal step in the process. You are able to see some of the study criteria and other information.

We will continue to provide you with updates as things progress.


We are please to provide the following community statement that has just been released by Ionis about their upcoming clinical trial.

Ionis prion community update - October 2023 - final