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CJD Support Group Network Australia
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Phone

Call our National toll-free helpline on

1800 052 466

Email

contactus@cjdsupport.org.au

Mail

PO Box 193, Round Corner NSW 2158 AUSTRALIA

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Make a donation to support CJD Research in Australia or to assist the work of the CJD Support Group Network supporting all Australians affected by CJD and other prion diseases.

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Shop

Buy a CJD Support Group item to help raise awareness and funds. Items start at $2 plus postage.

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News & Events

  • Link to post: ION717 trial fully enrolled
  • Clinical Trial Update for Prion Diseases, December 2024
  • Link to article (update from Prion Alliance): Divalent siRNA for prion disease

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CJDSGN FACEBOOK Page for Updates

CJD Support Group Network updated their profile picture.

2 weeks ago

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CJD Support Group Network updated their cover photo.

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2 weeks ago

CJD Support Group Network
ION717 trial fully enrolledDec 27, 2024 • ericminikel • Cambridge, MAThis morning Ionis Pharmaceuticals announced that it has completed enrollment of PrProfile, its Phase 1/2a trial of ION717, a PrP-lowering ASO for prion disease (NCT06153966). The study’s status is now listed as “Active, not recruiting” on ClinicalTrials.gov. ... See MoreSee Less

ION717 trial fully enrolled

www.cureffi.org

The PrProfile trial of ASO ION717 is now fully enrolled and not accepting new participants.
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CJD Support Group Network

1 month ago

CJD Support Group Network
It is with great sadness that we learnt of the loss of one of the real pioneers of prion disease. Working in Papua New Guinea from 1950s helping to discover the cause of Kuru amongst the Fore people they became his family. I am honoured to say that I had the opportunity to meet and get to know this wonderful man who was truely a legend but the most wonderful and humble human being you could ever meethttps://www.kirby.unsw.edu.au/news/vale-emeritus-professor-michael-alpers ... See MoreSee Less
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CJD Support Group Network

1 month ago

CJD Support Group Network
More exciting news on drug development for prion disease. Thank you Eric and Sonia for working so hard to find a treatment or cure for suffers as well as a 'switch' to turn off conversation to disease in healthy individuals who carry a mutation for prion disease.Prion Alliance ... See MoreSee Less

Prion Alliance

www.facebook.com

We are a 501(c)(3) non-profit devoted to funding scientific research towards a treatment or cure for
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The CJDSGN acknowledges the funding provided by the Department of Health
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Close Menu
  • What is CJD?
    • Forms of CJD
    • Symptoms of CJD
    • Diagnosing CJD
    • FAQs
    • Fact vs. Fiction
  • We support …
    • CJD family and friends
      • How we can help
      • Request an information package or join our mailing list
      • Family stories
      • Genetic testing
      • Dealing with a diagnosis of CJD
      • What we can expect
      • Palliative care
      • Death with dignity
      • Grief
      • Infection control and funerals
      • Autopsies
      • Contact Us
    • People at “increased risk”
      • Human Pituitary Hormone Recipients
        • Timeline of the Australian hPH program
        • Pituitary hormones initiatives
      • FAQs
      • Contact Us
    • Health care professionals
      • Education program
      • Handbook
      • Contact Us
  • Resources
    • Brochures and fact sheets
    • Information Packages
      • For CJD family members
      • For Health care professionals
    • Clinical Workshops
    • Annual National CJD Conferences
      • 2023 14th Annual National CJD Conference
    • PRNP Genetic testing
    • Diagnostic tools
    • Publications
      • Articles of interest
    • Healthshare
    • Research
    • Australian research
    • Related links
    • Surveillance in Australia
  • Infection Control
    • CJD families and those at risk
    • Completing a screening questionnaire
    • For health care professionals
    • For hospital admission staff
    • Organ and tissue donation
    • Funerals
  • Fundraising
    • CJDSGN Research Funding
    • Donate online
    • Shop
  • News
  • About us
    • Meet the team
    • Purpose and objective
    • Who we represent
    • Services we provide
    • CJD International Support Alliance (CJDISA)
    • Dedication
  • Contact