Some Perspectives on Prion Disease
Diagnosis, surveillance, genetic testing and clinical trial updates
Australian-Croatian runner completes epic 827km journey along Croatia’s coast
www.croatiaweek.com
By Vesna Trokter Australian-Croatian ultramarathon runner Aydan Marko Papac from Melbourne has completed the most demanding sporting feat of his career, one that few would dare to attempt, 827 kilomet...
Bridge To Brisbane | Queensland's Largest Fun Run
bridgetobrisbane.com.au
Join thousands of runners, walkers, and wheelers as we take over the Gateway Bridge on Sunday 13 September 2026 for an unforgettable morning.
2026 Transurban Bridge to Brisbane | CJD Support Group Network
click.grassrootz.com
Get ready to RUN FOR FUN when Queensland’s biggest, brightest, and best-loved fun run returns for it’s 30th Birthday in 2026! The Transurban Bridge to Brisbane will welcome an estimated 40,000 peo...
ION717 trial re-opens with 3rd dosing regimen
www.cureffi.org
Ionis Pharmaceuticals is adding a third dosing regimen to PrProfile, its Phase 1/2a trial in symptomatic prion disease.On Friday 5th June Dr Debra Scott was part of a panel at the International Dementia conference 2026 held in Sydney. This conference was attended by 1000 clinicians and health care workers and she again raised the flag promoting awareness of CJD/prion disease. 🧡🧡
Ionis Pharmaceuticals has re-opened its Phase 1/2a trial of a PrP-lowering antisense oligonucleotide drug for prion disease, adding a 3rd dosing regimen - blog post:
Final reminder...CJD family members and friends and those at increased risk of CJD, in Queensland are all invited to attend the next face to face meeting hosted by the CJD Support Group at the Mantra on South Bank on Saturday 14th March 2026. Please register online.
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