For current Fundraising Events, please click here

Creutzfeldt-Jakob disease (CJD) is an extremely rare and fatal neurological disease that has no effective treatment. The CJDSGN is keen to promote awareness and knowledge amongst health care professionals and support the work of the research teams with continued hope for a treatment or cure in the future. Every cent counts and the CJDSGN guarantees that all donations received go directly to support this goal.

The University of Melbourne, La Trobe University, Melbourne  and the University of Sydney are very appreciative of all monies received that assist the research teams in their work on CJD and prion diseases in Australia.

Our research community is very touched by the support that CJD families and friends give towards their work by providing that extra funding that, hopefully, will make the difference.

The CJD Support Group Network will continue to provide funds to assist with the purchase of equipment that will enhance the work that researchers are doing at the forefront of research into CJD to develop diagnostic and treatment strategies for this and similar diseases. Very recently funding has been provided for equipment that will see the introduction of the RT-QuIC diagnostic test into Australia.

With the generous support of CJD families and friends the CJDSGN has also provided a number of memorial awards to assist with new projects that will bring some exciting research work to a level required to attract future NHMRC funding. In recent years our focus has been on providing memorial grants to assist maintain the level of research into prion disease in Australia as traditional scientific research grants have been reduced across all fields.

Without the amazing support of families and friends in memory of a loved one lost to CJD, prion disease research would have been greatly decreased.

Thank you so much for caring and for helping us towards our goal of finding a cure for those who will unfortunately will be affected by this devastating disease in the future.

CJDSGN Memorial Grants, Awards and equipment purchases for 2019

Memorial Grants and Awards for 2019

CJDSGN 2019/2020 Memorial Grant in memory of Frank Burton
$55,000 awarded to Dr Victoria Lewis, Collins Laboratory, University of Melbourne.

CJDSGN Memorial Award in memory of Fiona Radojev
$12,560 awarded to Dr Cathryn Ugalde, La Trobe University, Melbourne. Project: ‘Assessing the sensitivity of prion disease-associated exosomal miRNA profiles to therapeutic intervention in organotypic brain slices’.

CJDSGN 2019/2020 Memorial Grant in memory of Catherine and Michael Heagerty
$19,476 awarded to Dr Cathryn Ugalde, La Trobe University, Melbourne. Project: ‘Elucidating the role of non-neuronal brain cells in the pathogenesis of prion disease during’.

CJDSGN Memorial Award in memory of Adrian Chesterton, Norma Crawley and Danilo Banzon
$12,000 awarded to Dr Lesley Cheng, La Trobe University, Melbourne. (Report by Professor Andrew Hill) Project: ‘Profiling serum derived exosome-associated miRNA as a diagnostic tool for prion disease’.

CJDSGN Memorial Award in memory of Michael Luscombe
$51,600 awarded to Dr Dhamidhu Eratne, Melbourne Health. Project: ‘Utility of cerebrospinal fluid neurofilament light chain in Creutzfeldt-Jakob disease’.

CJDSGN Memorial Award in memory of Jennifer Duckworth
$25,000 awarded to Associate Professor Victoria Lawson, University of Melbourne. Project: ‘Treatment of medically relevant prion disease’.

CJDSGN Memorial Award in memory of Michael John Dempsey (MJD for CJD Golf Day and Dinner)
$25,600 awarded to Associate Professor Victoria Lawson, University of Melbourne. Project: ‘The role of co-pathologies in the clinical presentation of prion disease’.

CJDSGN Memorial Award in memory of Anne Friswell, Peter Delchau and Pamela Stead
$10,000 awarded to Associate Professor Victoria Lawson, University of Melbourne. Project: ‘The effect of human strain variation on prevention of prion disease transmission’.

CJDSGN equipment donations 2019

CJDSGN Memorial donation in memory of Mario Papalia
$35,600 to the ANCJDR for the purchase of an additional FLUOstar Omega for RT-QuIC .

2019 Travel Awards to assist students and young researchers to participate in overseas prion conferences

CJDSGN Travel Award in memory of Silva Coelho
Awarded to Laura Ellett- Lawson Research Laboratory, Melbourne- to attend the 2019 Asian Pacific Prion Symposium in Tokyo, Japan.

CJDSGN Travel Award in memory of Silva Coelho
Awarded to Wenting Zhao- La Trobe University, Melbourne- to attend Prion 2019 in Edmonton, Canada.

CJDSGN Special Travel Award in memory of Robert Sisson, Chris Hausler, Pamela List, Audrey Marshall and other loved ones lost to CJD.
Awarded to Christiane Stehmann.

2019 ‘Top up’ Scholarship Awards

Carol Willesee Ph.D. Top-Up Scholarship
$9,400 awarded to Laura Ellett, Lawson Research Laboratory, University of Melbourne.

CJDSGN Memorial Grants, Awards and equipment purchases for 2018- Total $295,328.34

Memorial Grants and Awards for 2018

CJDSGN Memorial Grant- City2Sea 2018 in memory of Stephen (Jake) O’Hara (Team Jake), Jennifer Duckworth (Team Jenny) and others lost to CJD (Funding was provided from the 2016 and 2017 City2Sea Fundraising event)
$50,000 awarded to Dr Victoria Lewis, Collins Laboratory, University of Melbourne.

CJDSGN Memorial Award in memory of Michael Luscombe
$45,000 awarded to Dr Victoria Lewis. Project:’Matrix metalloprotease mediated prion protein proteolysis: Investigating normal processing and links to prion disease’.

CJDSGN Memorial Grant in memory of Frank Burton, Bassil Gianniodis, Primo Monaco, Rhonda Sanders, Cesarina Still and Ross Glasscock and others lost to CJD 
$50,000 awarded to Dr Simon Drew, Department of Medicine, Royal Melbourne Hospital.

CJDSGN Memorial Award in memory of Dominic Battista
$50,ooo awarded to Dr Victoria Lawson, Lawson Research Group, University of Melbourne.

CJDSGN Memorial Award in memory of Catherine Heagerty
$15,000 for consumables for the project ‘Mouse model of sporadic CJD’.

CJDSGN Memorial Award in memory of Michael Luscombe
$57,420 awarded to Dr Dhamidhu Eratne- Neuropsychiatrist, Neuropsychiatry Unit, Royal Melbourne Hospital. Project: ‘Utility of cerebrospinal fluid neurofilament light chain in Creutzfeldt-Jakob disease’.

CJDSGN equipment donations 2018

CJDSGN Memorial donation in memory of Judith Liauw, Douglas Brown, Catherine Heagerty and Shirley Joiner
$12,490 to ANCJDR for the purchase of an additional freezer.

CJDSGN Memorial Award in memory of Catherine Heagerty
$8,086.49 for the purchase of equipment for the project ‘Mouse model of sporadic CJD’

CJDSGN Special Award in memory of Mario Papalia
$2,950, $1550 and $2,322 to enhance the development of Rt-QulC

2018 Travel Awards to assist students and young researchers to participate in overseas prion conferences

CJDSGN Travel Award in memory of Silva Coelho
1 x $1,000 awarded to Abu Mohammed Taufiqual Islam

CJDSGN Travel Award in memory of Silva Coelho
2 x $1,000 awarded to Dr Matteo Senesi

2018 ‘Top up’ Scholarship Awards

Carol Willesee Ph.D. Top-Up Scholarship
$5,000 awarded to Abu Mohammed Taufiqual Islam.

CJDSGN Top-Up Scholarship in memory of Primo Monaci
$5,000 awarded to Ms Laura Ellett, Lawson Research Group, University of Melbourne

CJDSGN Memorial Grants, Awards and equipment purchases for 2017- Total $134,014.70

Memorial Grants and Awards for 2017

CJDSGN Memorial Award in memory of Frank Burton
Grant No 4 2017- $40,000 Awarded to the Lawson Laboratory, University of Melbourne.

CJDSGN Memorial Award in memory of Lorraine Seabrook
Grant No 5  2017- $51750.00 Awarded to Professor Andrew Hill, La Trobe University, Melbourne.

CJDSGN Memorial Grant in memory of Frank Burton
Grant No 6 2017-$19,803.80 Awarded to Cathryn Ugalde, Hill Laboratory, La Trobe.
Ph.D. scholarship $14803.80 plus $5000 consumables.

CJDSGN equipment donations 2017

CJDSGN donation in memory of Norma Crawley
Cell Counter – $4210.90 – Professor Andrew Hill, La Trobe University, Melbourne.

2017 ‘Top up’ Scholarship Awards

Carol Willesee Ph.D. Scholarship
$5,000 Awarded to Taufiqual Islam, Collins Laboratory, University of Melbourne.

CJDSGN Memorial Ph.D. Scholarship in memory of Marek Gorcynski
$5000 Awarded to Simote Foliaki, Collins Laboratory, University of Melbourne.

CJDSGN Memorial Ph.D. Scholarship in memory of Frank Burton
$5000 Awarded to Laura Ellett, Lawson Laboratory, University of Melbourne.

CJDSGN Memorial Ph.D. Scholarship in memory of David Matthews
$3250 Awarded to Cathryn Ugalde, Hill Laboratory, La Trobe, Melbourne.

CJDSGN Memorial Grants, Awards and equipment purchases for 2016 – Total $181,300

Memorial Grants and Awards for 2016

CJDSGN Memorial Grant in memory of Sandra Kernahan, Stephen (Jake) O’Hara, Catherine Heagerty, Grasso family, Victoria Larielle, Barbara Childerhouse, Marilyn Hart and Pamela Thomas (City2Sea 2015)
Grant No 1 2016 – $25,000 Awarded to Dr Victoria Lewis.

CJDSGN Memorial Grant in memory of Rhonda McCoy and the many people affected by prion disease in Australia
Grant No 2 2016 –  $25,000 Awarded to Dr Cathryn Haigh.

CJDSGN Memorial Grant in memory of Susan Maclean, Carmel Petersen, Anne O’Shea, Leslie Cleary, Beryl Hogg, Peter Smith, Sophie Desteno, Pamela Conoulty and Richard Ratliff
Grant No 3 2016 –  $25,000 Awarded to Laura Ellett.

CJDSGN Memorial award in memory of Silva Coelho, Year 2 funding
$31,200 Awarded to Professors Simon Hawke and Georges Grau, University of Sydney.

CJDSGN equipment donations and funding to the Australian National CJD Registry 2016 – $57,106

CJDSGN donation in memory of Douglas Brown
Forma™ 900 Series -86°C Upright Ultra-Low Temperature Freezer – $12,990

CJDSGN donation in memory of Mario Papalia
FLUOstar Omega – Plate Reader – $31,700

CJDSGN Special Travel Award in memory of Sandra Kernahan
Awarded to Shannon Sarros –2 week training visit to Edinburgh UK for RT-QuIC training – $7,033

CJDSGN Special Travel Award in memory of Frank Burton
Awarded to Dr Christiane Stehmann – visit to the CJD Foundation conference, Washington DC, National Prion Disease Pathology Surveillance Unit (NPDPSC) Cleveland USA and the CJD Program, University of California, San Francisco –   USA  $5,383.

2016 Travel Awards to assist students and young researchers to participate in overseas prion conferences

CJDSGN Travel Award in memory of Silva Coelho
$1,000 Awarded to Cathryn Ugalde.

CJDSGN Travel Award in memory of Silva Coelho
$1,000 Awarded to Simote Foliaki.

2016 ‘Top up’ Scholarship Awards

Carol Willesee Ph.D. Scholarship
$8,000 Awarded to Cathryn Ugalde, Hill Laboratory.

CJDSGN Memorial Ph.D. Scholarship in memory of Sandra Kernahan
$8,000 Awarded to Taufiqual Islam, Collins Laboratory.

Thanks again to our sponsor Australian Animal Care Systems Pty Ltd for continued and ongoing support of research in Australia in memory of Silva Coelho.

We would also like to acknowledge donations made in memory of so many lost to CJD – every cent helps towards an answer and hope.