DVD produced by CJDSGN.
Our amazing, dedicated and a lovably crazy researchers and surveillance staff in Melbourne had a Zoom Meeting today in honour of International CJD Awareness day and sent us all these photos of them wearing Orange today in memory of those lost to CJD in Australia. They are thinking of you and your loved ones lost to CJD and are forever grateful for the funding support from families for prion disease research and improvements with diagnostic Tools. The very special bond between CJD families, those at risk, our research community and our surveillance unit grows stronger every year and as a team we are making a difference promoting awareness and working towards a treatment or cure. ... See MoreSee Less
Tomorrow is International CJD Awareness Day. Please wear orange and take the time to educate just a few more people about this devastating disease that takes the life of more than 50 Australians and about 8 of our New Zealand friends each and every year. CJDSGN has run an education program since 2008 but it is you, CJD family and friends and those at risk of CJD, who can make the most impact by promoting awareness. In honour of this day we will be posting our updated version of the memorial wall. Sadly this becomes longer each year but it is important to honour those lost and keep striving and supporting our researchers towards a treatment or cure so other families do not have to suffer as many of you in this group have. We are a very strong CJD family and global community and in Australia we have developed incredible bonds between our CJD families, those at risk, our surveillance unit and our amazing prion disease researchers. This bond grows stronger every year. Together we can make a difference. ... See MoreSee Less