These guidelines have been developed by a committee consisting of representatives of clinical genetic services, genetic testing laboratories, the CJD Support Group Network (CJDSGN) and the Australian National Creutzfeldt-Jakob Disease Registry (ANCJDR). Feedback and information from the New Zealand CJD Register, Human Genetics Society of Australasia and Genetic Services is incorporated.
We have an open IND. What comes next?
www.cureffi.org
FDA has cleared a new drug to advance to first-in-human studies in prion disease patients. Here's what this means.
Team hits milestone toward prion disease treatment — Harvard Gazette
news.harvard.edu
Patient-scientist and husband are among the researchers who developed a promising gene-editing treatment for the rare, fatal condition.
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