ION717 trial fully enrolledDec 27, 2024 • ericminikel • Cambridge, MAThis morning Ionis Pharmaceuticals announced that it has completed enrollment of PrProfile, its Phase 1/2a trial of ION717, a PrP-lowering ASO for prion disease (NCT06153966). The study’s status is now listed as “Active, not recruiting” on ClinicalTrials.gov. ... See MoreSee Less

ION717 trial fully enrolled

www.cureffi.org

The PrProfile trial of ASO ION717 is now fully enrolled and not accepting new participants.

View on Facebook

CJD Support Group Network

1 month ago

It is with great sadness that we learnt of the loss of one of the real pioneers of prion disease. Working in Papua New Guinea from 1950s helping to discover the cause of Kuru amongst the Fore people they became his family. I am honoured to say that I had the opportunity to meet and get to know this wonderful man who was truely a legend but the most wonderful and humble human being you could ever meethttps://www.kirby.unsw.edu.au/news/vale-emeritus-professor-michael-alpers ... See MoreSee Less

View on Facebook

CJD Support Group Network

1 month ago

More exciting news on drug development for prion disease. Thank you Eric and Sonia for working so hard to find a treatment or cure for suffers as well as a 'switch' to turn off conversation to disease in healthy individuals who carry a mutation for prion disease.Prion Alliance ... See MoreSee Less

Prion Alliance

www.facebook.com

We are a 501(c)(3) non-profit devoted to funding scientific research towards a treatment or cure for

View on Facebook

© 2025 CJD Support Group Network Australia.
The CJDSGN acknowledges the funding provided by the Department of Health
that assists towards the cost of this website.
Disclaimer Privacy Policy

DVD- What Is CJD?

Description

Donate

Shop

News & Events

Connect with us

CJDSGN FACEBOOK Page for Updates