For those of you participating in the City2Sea or organising a statellite event in your own area for CJD International Awareness Day on 12th November please email email@example.com to request your free Tee-shirts. We have limted numbers in some sizes so first in first served!! ... See MoreSee Less
Join us in honour of CJD International Awareness Day on 12th November 2017 by participating in the City2Sea in Melbourne or by organising your own statillite event to raise awareness in your own community. Details now posted events.cjdsupport.org.au/city-2-sea/... See MoreSee Less
In honour of CJD International Awaeness Day 12th November 2017 Enter to be part of the City2Sea and walk or run in honour of CJD International Awareness Day. secure.tiktok.biz/register/default.aspx?EventID=City2Sea&Edition=2017 At this stage enter as an individual participant Or Set up your own satellite event anywhere in Australia – just get together with a group of friends and promote awareness of CJD on 12th November 2017. To create a fundraising page – anyone can create a fundraising page and join Team Prion even if not participating in an event. You can also participate in the City2Sea or a satellite event and not set up a fundraising page. We all ask a lot of others in supporting this cause so if you just prefer to participate and raise awareness we appreciate your involvement. city2sea2017.everydayhero.com/au/get-started Select CJD Support Group Network by entering name in the search bar for a chairty Fill in details and then click create fundraising page making sure that CJD Support Group Network is noted as your charity. Once you have created your fundraising page you will be asked to create a team or join an existing team. Click on join an existing team, find Team Prion and join so that together we can all make a difference. Last year Team Prion came in 1st place as the team who raised the largest amount of money so we want to keep this position. Everyone who is participating in the City2Sea or another event can request an orange Tee shirt by emailing firstname.lastname@example.org All we ask is that you promote awareness on the day and post some photos on our face book page www.facebook.com/CJDSGN/ The more orange Tee shirts out and about on 12th November the more awareness we can all create. Our ribbons and bracelets are also available so please go to our shop www.cjdsupport.org.au and place your order in time so that on 12th November, you can encourage your friends to wear a CJD awareness ribbon or bracelet. ... See MoreSee Less
A conference on Creutzfeldt-Jakob disease (CJD) and other prion diseases for: CJD family members People at increased risk of developing CJD Health care professionals involved in patient care or infection prevention and control ProgramScheduleAccommodationProgram Key speakers from overseas will provi...
Thank you to all of you who attended the CJD family support meeting in Sydney today. It was nice to personally meet some of our new families and thank you so much to our 'older' CJD family who were there to support those who have recently lost a loved one. It is a hard day, very emotional, lots of tears but also good sharing some beautiful memories. I hope that being able to share feelings with others, who really do undersand, was very healing and.I hope that you all found it comforting to be able to talk with other families, ask questions and gain information about prion disease, processes in place and the experiences of other families. xxx We also hope that having met others you will feel comfortable joining us for the conference on 18th November in Melbourne if you are available to attend. ... See MoreSee Less