You are invited to attend a CJD Support Group Network (CJDSGN) family meeting. Hosted by: Suzanne Solvyns and David Ralston – representing the Committee of the CJD Support Group Network. This meeting is an informal meeting as a general update and this will also provide the opportunity to discuss a...
To join us on Sunday 14th October and register to participate in the Melbourne Marathon see link below. If you already do not have a CJDSGN orange Tee-shirt and plan to participate by walking or running with us on 14th October email email@example.com to request your Tee-shirt and join the #seaoforange melbournemarathon.com.au/... See MoreSee Less
Please join us on Sunday 14th October by participating in the Melbourne Marathon to promote aware of CJD and raise much needed funds for prion disease research in Australia. For your free tee-shirts for all participants please email firstname.lastname@example.org. You can walk or run a short or long distance but please be there to join the #seaoforange For the last 4 years the City2Sea in Melbourne in November has been a major fundraiser and awareness event for the CJDSGN. Walking and running together has seen prion disease researchers, Australian National CJD Registry staff, committee of the CJDSGN and families unite to promote awareness with our stand-out orange Tee-shirt we were often asked 'What is CJD'. We have also been the top fundraising team 3 out of the 4 years and each years the support for this event has grown in numbers with over 300 people participating in 2017. Sadly this event has been cancelled so we need your help to get this new event up and running with hopefully the same success. You can set up a fundraising page and join Team Prion or just come along on the day to offer support and promote awareness. We will set up a time for a group photo once we have checked the various walk and run schedules. Hope to see you there!! melbournemarathon2018.everydayhero.com/au/team-prion-1... See MoreSee Less
After TEAM PRION's success over the last few years, with so many orange T-shirts dotted throughout the run (#seaoforange), and MASSIVE fundraising efforts, we're entering this team again, this time in the Melbourne Marathon!!! We are committed to raising AWARENESS of the group of rare neurodegenerat...
For all affected by CJD you are invited to attend a NSW CJD Support Group Meeting on Saturday 22nd September 2018
You are invited to attend a CJD Support Group Network (CJDSGN) family meeting.
Date: Saturday 22rd September 2018 Time: 2pm to 5.30pm - afternoon tea will be provided Venue: Kirribilli Club Address: 11 Harbourside Crescent, Lavender Bay NSW 2060 Telephone No: 02 99552245 (Parking is available under the club)
RSVP: Thursday 20th September 2018 Final numbers will be required for catering purposes by this date.
Email: email@example.com or call the toll free number 1800 052466
Hosted by: Suzanne Solvyns and David Ralston - representing the Committee of the CJD Support Group Network.
This meeting is an informal meeting where you will have the opportunity to ask any questions, share your stories with other family members who understand the difficult journey called CJD and link in with other family members for mutual support. For those of you who have attended meetings and conferences in the past we hope that you will also come along to help us to support the new families who unfortunately continue to have their lives touched by this monster of a disease. This is also a good way to meet others in advance if you plan to attend the Annual National CJD Conference on 24th November 2018.
The 1800 052466 will be diverted to my mobile in case you need to make contact on the day of the meeting. ... See MoreSee Less