www.ualberta.ca/medicine/news/2020/october/creutzfeldt-jakob.html?fbclid=IwAR1JIx0UOIHnl62yRjRHyE...
Passionately fundraising for a one-in-a-million illness
www.ualberta.ca
After their loved one passed away from Creutzfeldt-Jakob Disease, this group banded together to raise money for the rare disease.science.sciencemag.org/content/370/6512/32
Shifts and drifts in prion science
science.sciencemag.org
Paradigm shifts are drivers of scientific progress, yet the shifters of the paradigms often experience scorn rather than immediate applause. That was the fate of Stanley Prusiner's 1982 paper claiming—to the initial amusement of his colleagues—that scrapie, a degenerative disease that affects th...Thank you again to our friends at the CJD Foundation for allowing us to share another of their virtual presentations. Professor Brian Appleby, who many of you know as he is a regular speaker at our annual conference in Melbourne, is interviewing Dr Anne Smith from Ionis who talks about the hope for clinical trials late 2021 of ASO. Professor Steven Collins and I had a meeting with Anne and also Eric Minikel and Sonia Vallabh at Prion 2019 in Edmonton and did indicate our interest in a trial happening in Australia. Understandably the trials will be held where ever Ionis believe is most suitable but at least we have lodged our interest. www.youtube.com/watch?v=3yJyWvuGscQ&feature=youtu.be&fbclid=IwAR0cadWRNKj08pwAn4W1NSPBRKvrPNM0trQ...
Antisense Oligonucleotides for Prion Disease
www.youtube.com
Anne Smith, Executive Director, Clinical Development at Ionis Pharmaceuticals Anne Smith, PhD, is an Executive Director of Clinical Development at Ionis Phar...Thank you to Debbie Yobs and the team at CJD Foundation US for agreeing for us to post some of the virtual 2020 CJD Conference sessions. Today we would like to present Dr Simon Mead from the Prion Unit in London. The presentation is titled 'Genetic prion disease and how genetics may help us understand sporadic CJD' I understand Simon may also provide an update on PRN100 drug study.
www.youtube.com/watch?v=L4-TFl692Fk&feature=youtu.be&fbclid=IwAR2WBe4JZkBR1_C2UeEUkHfRVu6no_i9h_h...
Genetic Prion Disease and How Genetics Might Help Us Understand Sporadic CJD
www.youtube.com
Professor Simon Mead, Consultant Neurologist & Clinical Lead, UK National Prion Clinic, National Hospital for Neurology & Neurosurgery discusses his work stu...International CJD .Awareness Day is 12th November. Although we cannot gather together this year please promote awareness by wearing orange, an awareness ribbon or pin or bracelet. Visit our shop www.cjdsupport.org.au/shop/
© 2020 CJD Support Group Network Australia.
The CJDSGN acknowledges the funding provided by the Department of Health
that assists towards the cost of this website.
Disclaimer Privacy Policy
