CJD Support Group Network Australia
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  • What is CJD?
    • Forms of CJD
    • Symptoms of CJD
    • Diagnosing CJD
    • FAQs
    • Fact vs. Fiction
  • We support …
    • CJD family and friends
      • How we can help
      • Request an information package or join our mailing list
      • Family stories
      • Genetic testing
      • Dealing with a diagnosis of CJD
      • What we can expect
      • Palliative care
      • Death with dignity
      • Grief
      • Infection control and funerals
      • Autopsies
    • People at “increased risk”
      • Human Pituitary Hormone Recipients
        • Timeline of the Australian hPH program
        • Pituitary hormones initiatives
      • FAQs
    • Health care professionals
      • Education program
      • Handbook
  • Resources
    • Brochures and fact sheets
    • Information Packages
      • For CJD family members
      • For Health care professionals
    • Conference presentations
    • PRNP Genetic testing
    • Infection Control Guidelines
    • Diagnostic tools
    • Publications
      • Articles of interest
    • Healthshare
    • Research
    • Related links
    • Surveillance in Australia
  • Infection Control
    • CJD families and those at risk
    • Completing a screening questionnaire
    • For health care professionals
    • For hospital admission staff
    • Organ and tissue donation
    • Funerals
  • Fundraising
    • Research Grants
    • Donate online
    • Shop
  • News
  • About us
    • Meet the team
    • Purpose and objective
    • Who we represent
    • Services we provide
    • CJD International Support Alliance (CJDISA)
    • Dedication
  • Contact
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Publications

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Make a donation to support CJD Research in Australia or to assist the work of the CJD Support Group Network supporting all Australians affected by CJD and other prion diseases.

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Shop

Buy a CJD Support Group item to help raise awareness and funds. Items start at $2 plus postage.

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News & Events

  • CJDSGN 12th Annual National 2019 Conference
  • Memorial Wall 2019
  • Dr Cathryn Haigh

Connect with us

  Join our private Facebook Group to communicate with other families

CJDSGN FACEBOOK Page for Updates

CJD Support Group Network

5 days ago

CJD Support Group Network

www.cjdsupport.org.au/site/wp-content/uploads/2019/12/binyamin-et-al-nanopso-and-5FAD.pdf ... See MoreSee Less

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CJD Support Group Network

5 days ago

CJD Support Group Network

If you are a CJD family member living in New Zealand please contact us via the link below. CJD Support is currently being established to provide information and offer support and assistance to CJD families who are dealing with or have lost a loved one to CJD in New Zealand. If you would like to get involved, interested in attending our first family meeting around April 2020 or just want some information and help please fill in the contact form on the website and we will contact you. www.cjdsupport.org.nz/ . We thank the CJD surveillance registry in New Zealand for supporting and assisting with this process. ... See MoreSee Less

CJD Support New Zealand

www.cjdsupport.org.nz

CJD Support New Zealand CJD Support New Zealand (CJDS NZ) is in the process of being established to offer support, information and assistance for family members and friends of patients suffering with suspected CJD in New Zealand and other prion diseases and for those at increased risk of developing....
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CJD Support Group Network

1 week ago

CJD Support Group Network

sharinghealthygenes.com/genetic-prion-disease-stopped/?fbclid=IwAR1vLUA2IirauUm6uYVz0N1zmyvmmfQRQ... ... See MoreSee Less

Six Generations of Genetic Prion Disease Stopped with the Help of PGT

sharinghealthygenes.com

For most of us, there is no single day that defines the course of our
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CJD Support Group Network

1 week ago

CJD Support Group Network

Our new awareness ribbons are now in stock and they look great. to order or check out other awareness products www.cjdsupport.org.au/shop/ ... See MoreSee Less

Photo

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CJD Support Group Network

2 weeks ago

CJD Support Group Network

www.prionalliance.org/2019/12/02/end-of-the-year-update/?fbclid=IwAR3zXifwFHZ4DhFilBm_GVGhdOA2LOB... ... See MoreSee Less

Our progress against prion disease in 2019

www.prionalliance.org

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© 2019 CJD Support Group Network Australia.
The CJDSGN acknowledges the funding provided by the Department of Health
that assists towards the cost of this website.
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  • What is CJD?
    • Forms of CJD
    • Symptoms of CJD
    • Diagnosing CJD
    • FAQs
    • Fact vs. Fiction
  • We support …
    • CJD family and friends
      • How we can help
      • Request an information package or join our mailing list
      • Family stories
      • Genetic testing
      • Dealing with a diagnosis of CJD
      • What we can expect
      • Palliative care
      • Death with dignity
      • Grief
      • Infection control and funerals
      • Autopsies
    • People at “increased risk”
      • Human Pituitary Hormone Recipients
        • Timeline of the Australian hPH program
        • Pituitary hormones initiatives
      • FAQs
    • Health care professionals
      • Education program
      • Handbook
  • Resources
    • Brochures and fact sheets
    • Information Packages
      • For CJD family members
      • For Health care professionals
    • Conference presentations
    • PRNP Genetic testing
    • Infection Control Guidelines
    • Diagnostic tools
    • Publications
      • Articles of interest
    • Healthshare
    • Research
    • Related links
    • Surveillance in Australia
  • Infection Control
    • CJD families and those at risk
    • Completing a screening questionnaire
    • For health care professionals
    • For hospital admission staff
    • Organ and tissue donation
    • Funerals
  • Fundraising
    • Research Grants
    • Donate online
    • Shop
  • News
  • About us
    • Meet the team
    • Purpose and objective
    • Who we represent
    • Services we provide
    • CJD International Support Alliance (CJDISA)
    • Dedication
  • Contact