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CJD Fundraising Event
In February of 2017 and 2018 we have run the successful event, A Night With the Champions, to raise awareness and funds for research for Creutzfeldt–Jakob disease (CJD), the rare and fatal brain disease we lost our wife and mum Cathy to in 2012.
We are pleased to announce that with almost 200 attendees in 2017 and 250 in 2018 along with generous donations we have raised over $22,000! At our 2018 event we were proud to announce a $15,000 grant to A/Prof Victoria Lawson and the purchase of equipment to be used by the University of Melbourne to continue the important research into CJD.
With two successful events under our belt, we are getting ready for another event in 2019
Save the date
When: 1 March 2019
Where: The Committee Room at Moonee Valley Racecourse
More details including how to buy tickets will arrive in your inbox shortly.
If you know of someone who would like to receive updates on the event, please contact us.
Thanks for your support
Mick, Luke and Julia Heagerty
Vicki Lewis to CJD Support Group Network
Yesterday at 1:44 PM ·
Hi Folks. If anyone is doing the 3km walk on Sunday, there are a few of us meeting at Flinders St station under the clocks at 11am (the walk starts 11:45am) to get a group photo.
Hi Folks. If anyone is doing the 3km walk on Sunday, there are a few of us meeting at Flinders St station under the clocks at 11am (the walk starts 11:45am) to get a group photo.
Hi CJDSGN families. As you would know, this years Team Prion “And so I ran....” fun run is the Melbourne Marathon festival. There are a couple of us researchers registered to do the 3km walk, and I know David is coming down from Sydney, but I’m not sure who else is walking/running. If anyone else has registered, please let me know, as we will try and work out whether we can get a group photo somewhere either before or after. Ta!
www.bbc.com/news/health-45796553
Judge approves use of CJD treatment
bbc.com
Doctors are given legal permission to use the man-made antibody on a person for the first time.© 2018 CJD Support Group Network Australia.
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