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CJD Support Group Network Australia
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News & Events

  • Link to Article: Concordance of CSF RT-QuIC across the European Creutzfeldt-Jakob Disease surveillance network
  • Link to article: Mad cow disease ban for blood donations from UK residents lifted in Australia by TGA
  • Article: Early Diagnosis of V180I Genetic Creutzfeldt-Jakob Disease at the Preserved Cognitive Function Stage

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CJDSGN FACEBOOK Page for Updates

CJD Support Group Network

3 days ago

CJD Support Group Network
The family of Ronnie, who died of genetic prion disease, is organising a fundraising and awareness event to be held on International CJD Awareness Day, 12th November 2022. Registration is open - please see the link below that is now on our website. I any one else would like to organise a similar event on the same day the CJDSGN will assist you with organising that. www.cjdsupport.org.au/product/run-ride-ronnie/ ... See MoreSee Less

Run or Ride for Ronnie – CJD Support Group Network Australia

www.cjdsupport.org.au

© 2022 CJD Support Group Network Australia. The CJDSGN acknowledges the funding provided by the Department of Health that assists towards the cost of this website.Disclaimer Privacy Policy
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CJD Support Group Network

3 weeks ago

CJD Support Group Network
www.forbes.com/sites/williamhaseltine/2022/06/09/unraveling-hope-for-prion-disease-and-other-prog... ... See MoreSee Less

Unraveling Hope For Prion Disease And Other Progressive Neurodegenerative Diseases

www.forbes.com

Prion diseases are rare, deadly neurodegenerative brain diseases that result from misfolding protein. Recent study encourages the development of antibodies to PrPC to prevent its conversion to PrPSc. ...
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CJD Support Group Network

1 month ago

CJD Support Group Network
Save the date for our Annual National CJD Conference www.cjdsupport.org.au/ ... See MoreSee Less

CJD Support Group Network Australia

www.cjdsupport.org.au

Prion protein monoclonal antibody (PRN100) therapy for Creutzfeldt–Jakob disease: evaluation of a first-in-human treatment programme
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CJD Support Group Network

2 months ago

CJD Support Group Network
www.docwirenews.com/abstracts/concordance-of-csf-rt-quic-across-the-european-creutzfeldt-jakob-di... ... See MoreSee Less

Concordance of CSF RT-QuIC across the European Creutzfeldt-Jakob Disease surveillance network

www.docwirenews.com

Eur J Neurol. 2022 May 7. doi: 10.1111/ene.15387. Online ahead of print.ABSTRACTBACKGROUND: Cerebrospinal fluid (CSF) Real Time-Quaking Induced Conversion
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CJD Support Group Network

2 months ago

CJD Support Group Network
www.abc.net.au/news/2022-04-28/qld-blood-donations-red-cross-mad-cow-disease-tga-ban-lifted/10102...Life Blood will no longer defer donors in Australia who lived in UK between 1980 and 1986 for 6 months or more. There is no indication that the changes will also affect deferral of CJD family members (1st and 2nd degree) but we will keep you updated with any additional information. Any family member, where a DNA test has confirmed their blood relative did not carry a mutation for genetic prion disease, can donate blood once they have provided a copy of a normal PRNP result to Life Blood prior to presenting to donate ... See MoreSee Less

Mad cow disease ban for blood donations from UK residents lifted in Australia by TGA

www.abc.net.au

People currently barred from donating blood in Australia will soon be able to roll up their sleeves after the TGA approved Red Cross Lifeblood to receive donations from people who lived in the UK betw...
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© 2022 CJD Support Group Network Australia.
The CJDSGN acknowledges the funding provided by the Department of Health
that assists towards the cost of this website.
Disclaimer    Privacy Policy

Close Menu
  • What is CJD?
    • Forms of CJD
    • Symptoms of CJD
    • Diagnosing CJD
    • FAQs
    • Fact vs. Fiction
  • We support …
    • CJD family and friends
      • How we can help
      • Request an information package or join our mailing list
      • Family stories
      • Genetic testing
      • Dealing with a diagnosis of CJD
      • What we can expect
      • Palliative care
      • Death with dignity
      • Grief
      • Infection control and funerals
      • Autopsies
      • Contact Us
    • People at “increased risk”
      • Human Pituitary Hormone Recipients
        • Timeline of the Australian hPH program
        • Pituitary hormones initiatives
      • FAQs
      • Contact Us
    • Health care professionals
      • Education program
      • Handbook
      • Contact Us
  • Resources
    • Brochures and fact sheets
    • Information Packages
      • For CJD family members
      • For Health care professionals
    • Conference presentations
    • PRNP Genetic testing
    • Infection Control Guidelines
    • Diagnostic tools
    • Publications
      • Articles of interest
    • Healthshare
    • Research
    • Related links
    • Surveillance in Australia
  • Infection Control
    • CJD families and those at risk
    • Completing a screening questionnaire
    • For health care professionals
    • For hospital admission staff
    • Organ and tissue donation
    • Funerals
  • Fundraising
    • CJDSGN Research Funding
    • Donate online
    • Shop
  • News
  • About us
    • Meet the team
    • Purpose and objective
    • Who we represent
    • Services we provide
    • CJD International Support Alliance (CJDISA)
    • Dedication
  • Contact