For a broader view of CJD generally, these sites might be useful. We do not necessarily endorse the information they provide.

 

  • EUROCJD – Creutzfeldt-Jakob Disease International Surveillance Network
  • The Brain Foundation – CJD
    The Brain Foundation raises funds to reduce the incidence and impact of disorders of the brain, spinal cord and nervous system through the provision of community education and research. Access to the CJD Section.
  • PRNP Testing Guidelines
    Guidelines for diagnostic testing of DNA to establish or rule out a genetic cause for a patient’s illness with suspected CJD and for predictive testing of individuals who have a family history of prion disease.