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CJD Support Group Network Australia
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  • What is CJD?
    • Forms of CJD
    • Symptoms of CJD
    • Diagnosing CJD
    • FAQs
    • Fact vs. Fiction
    • An Introduction to Prion disease
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    • CJD family and friends
      • How we can help
      • Request an information package or join our mailing list
      • Family stories
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      • Dealing with a diagnosis of CJD
      • What we can expect
      • Palliative care
      • Death with dignity
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      • Infection control and funerals
      • Autopsies
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    • People at “increased risk”
      • Human Pituitary Hormone Recipients
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        • Pituitary hormones initiatives
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      • 2023 14th Annual National CJD Conference
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Phone

Call our National toll-free helpline on

1800 052 466

Email

contactus@cjdsupport.org.au

Mail

PO Box 193, Round Corner NSW 2158 AUSTRALIA

Donate

Make a donation to support CJD Research in Australia or to assist the work of the CJD Support Group Network supporting all Australians affected by CJD and other prion diseases.

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Shop

Buy a CJD Support Group item to help raise awareness and funds. Items start at $2 plus postage.

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News & Events

  • Register – CJDSGN Perth Meeting – 21st June 2025
  • Registrations now open – 16th Annual National CJD Conference
  • Register – CJDSGN Melbourne Meeting – 3rd May 2025

Connect with us

  Join our private Facebook Group to communicate with other families

CJDSGN FACEBOOK Page for Updates

CJD Support Group Network

5 days ago

CJD Support Group Network
Thanks to the Jeanelle and her Parkwood Rotary Club friends for organising a fundraising 5km walk at the Gold Coast Marathon. We all had a ball and they have so far raised nearly $6000! Awesome effort, hopefully do this again next year for anyone interested in joining in. ... See MoreSee Less

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CJD Support Group Network

4 weeks ago

CJD Support Group Network
www.prionalliance.org/2025/06/09/all-of-the-things/ ... See MoreSee Less

All of the things

www.prionalliance.org

Prion Alliance is a 501(c)(3) non-profit devoted to funding research towards a treatment or cure for human prion disease.
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CJD Support Group Network

2 months ago

CJD Support Group Network
macholevante.com/news-en/180569/prion-disease-latency-diagnostics-2025-breakthroughs-set-to-accel... ... See MoreSee Less

Prion Disease Latency Diagnostics 2025: Breakthroughs Set to Accelerate Market Growth by 18%+ - Macho Levante

macholevante.com

Unlocking the Hidden Phase: How Prion Disease Latency Diagnostics Are Transforming Early Detection in 2025. Explore the Technologies, Market Forces, and Future Outlook Shaping This Critical Field. Exe...
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CJD Support Group Network

2 months ago

CJD Support Group Network
CJD family members in Western Australia are invited to join an informal meeting on Saturday 21st June at the Mercure on Hay in Perth. www.tickettailor.com/.../cjdsuppo.../1704516/r/email ... See MoreSee Less

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CJD Support Group Network

3 months ago

CJD Support Group Network
More exciting news from Eric and Sonia in Boston on drug development and protential for more clinical trials ... See MoreSee Less

We have an open IND. What comes next?

www.cureffi.org

FDA has cleared a new drug to advance to first-in-human studies in prion disease patients. Here's what this means.
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The CJDSGN acknowledges the funding provided by the Department of Health
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Close Menu
  • What is CJD?
    • Forms of CJD
    • Symptoms of CJD
    • Diagnosing CJD
    • FAQs
    • Fact vs. Fiction
    • An Introduction to Prion disease
  • We support …
    • CJD family and friends
      • How we can help
      • Request an information package or join our mailing list
      • Family stories
      • Genetic testing
      • Dealing with a diagnosis of CJD
      • What we can expect
      • Palliative care
      • Death with dignity
      • Grief
      • Infection control and funerals
      • Autopsies
      • Contact Us
    • People at “increased risk”
      • Human Pituitary Hormone Recipients
        • Timeline of the Australian hPH program
        • Pituitary hormones initiatives
      • FAQs
      • Contact Us
    • Health care professionals
      • Education program
      • Handbook
      • Contact Us
  • Resources
    • Brochures and fact sheets
    • Information Packages
      • For CJD family members
      • For Health care professionals
    • Clinical Workshops
    • Annual National CJD Conferences
      • 2023 14th Annual National CJD Conference
      • 2024 15th Annual National CJD Conference
      • 2025 16th Annual National CJD Conference
    • PRNP Genetic testing
    • Diagnostic tools
    • Publications
      • Articles of interest
    • Healthshare
    • Research
    • Australian research
    • Related links
    • Surveillance in Australia
  • Infection Control
    • CJD families and those at risk
    • Completing a screening questionnaire
    • For health care professionals
    • For hospital admission staff
    • Organ and tissue donation
    • Funerals
  • Fundraising
    • CJDSGN Research Funding
    • Donate online
    • Shop
  • News
  • About us
    • Meet the team
    • Purpose and objective
    • Who we represent
    • Services we provide
    • CJD International Support Alliance (CJDISA)
    • Dedication
  • Contact