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For CJD family members

Packages for families are available free of charge on request.
Call 1800 052466 or email

DVD – Understanding CJD

We can also provide free of charge copies of our DVD ‘Understanding CJD’ that is informative for CJD families and friends.

Service lists

Service lists are included for each state so that families can link into services available free or for a minimal charge.


We can provide multiple copies of our brochure ‘What is CJD’ so that these can assist families when friends want to know more.

Coming soon – Handbook for families

We are currently working on a handbook for CJD families with information to the questions that you want to know. In the meantime if families would like a copy of the handbook for health care professionals we are happy to provide that and extra copies for any nursing staff involved with your loved one. We also offer free presentations to staff caring for your loved one.