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CJD Support Group Network Australia
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Make a donation to support CJD Research in Australia or to assist the work of the CJD Support Group Network supporting all Australians affected by CJD and other prion diseases.

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Shop

Buy a CJD Support Group item to help raise awareness and funds. Items start at $2 plus postage.

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News & Events

  • Memorial Wall 2023
  • CJD Conference 2023 – Registrations now open
  • Fundraising Event – CJD ‘Fluffy Charity Ball’, Brighton VIC

Connect with us

  Join our private Facebook Group to communicate with other families

CJDSGN FACEBOOK Page for Updates

CJD Support Group Network

2 weeks ago

CJD Support Group Network
We have now ready the updated version of our memorial wall in memory of so many lost to CJD and other prion diseases in Australia. The next update will be for our conference in November so if you want to submit a photo and have not done so already please email contactus@cjdsupport.org.au Sadly this memorial wall continues to grow........https://www.cjdsupport.org.au/memorial-wall-2023/ ... See MoreSee Less
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CJD Support Group Network

2 weeks ago

CJD Support Group Network
Last week to register if you want to join us and other CJD families members in Brisbane or Toowoomba ... See MoreSee Less

CJDSGN Queensland Meetings Registration – CJD Support Group Network Australia

www.cjdsupport.org.au

© 2023 CJD Support Group Network Australia. The CJDSGN acknowledges the funding provided by the Department of Health that assists towards the cost of this website.Disclaimer Privacy Policy
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CJD Support Group Network

4 weeks ago

CJD Support Group Network
You are invited to attend one ofthe Queensland meetings of theCJD Support Group NetworkHosted by Suzanne Solvyns and David Ralston,CJD Support Group Network (CJDSGN)BRISBANE MEETINGSaturday 30th September, 20231pm - 5pmAfternoon tea will be providedMantra South Bank Brisbane161 Grey Street, BrisbaneTOOWOOMBA MEETINGSunday 1st October, 20232pm - 5pmAfternoon tea will be providedQuest Toowoomba133 Margaret Street, ToowoombaWe will be providing an update on studies on improved diagnostics, blood markers and potential treatment or cure.GUEST SPEAKERDr Christiane StehmannAustralian National CJD Registry (ANCJDR) We hope that many of you can attend as it is important to be together to share stories and support one another.Please register your attendancevia the CJDSGN website: www.cjdsupport.org.au/qld-rego/RSVP by Monday 25th September 2023 ... See MoreSee Less

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www.cjdsupport.org.au

© 2023 CJD Support Group Network Australia. The CJDSGN acknowledges the funding provided by the Department of Health that assists towards the cost of this website.Disclaimer Privacy Policy
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CJD Support Group Network

4 weeks ago

CJD Support Group Network
If you would like an Australian loved one lost to CJD to be added to the Run 4 CJD T shirts. Please email to contactus@cjdsupport.org.au by 5pm this Friday 8th September. To donate to support this fundraising event and support Matty and his team of 10 running from Parliament House in Canberra 7th October and arriving in Warrnambool Victoria on Saturday 14th october please donate below. T shirts will be avaiable via our online shop and we will keep you posted when you can purchase. Donations will go to the CJDSGN to support prion disease research in Australia. Big event planned for Warrnambool on Saturday afteroon 14th October so save that date if you live in the area. www.gofundme.com/f/run-for-cjd-from-canberra-to-warrnambool-950km?member=28916539&sharetype=teams... ... See MoreSee Less

Run for CJD from Canberra to Warrnambool 950km, organized by Matt Stewart

www.gofundme.com

We have lost family members, friends, fathers, mothers, brothers, sisters... Matt Stewart needs your support for Run for CJD from Canberra to Warrnambool 950km
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CJD Support Group Network

1 month ago

CJD Support Group Network

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© 2023 CJD Support Group Network Australia.
The CJDSGN acknowledges the funding provided by the Department of Health
that assists towards the cost of this website.
Disclaimer    Privacy Policy

Close Menu
  • What is CJD?
    • Forms of CJD
    • Symptoms of CJD
    • Diagnosing CJD
    • FAQs
    • Fact vs. Fiction
  • We support …
    • CJD family and friends
      • How we can help
      • Request an information package or join our mailing list
      • Family stories
      • Genetic testing
      • Dealing with a diagnosis of CJD
      • What we can expect
      • Palliative care
      • Death with dignity
      • Grief
      • Infection control and funerals
      • Autopsies
      • Contact Us
    • People at “increased risk”
      • Human Pituitary Hormone Recipients
        • Timeline of the Australian hPH program
        • Pituitary hormones initiatives
      • FAQs
      • Contact Us
    • Health care professionals
      • Education program
      • Handbook
      • Contact Us
  • Resources
    • Brochures and fact sheets
    • Information Packages
      • For CJD family members
      • For Health care professionals
    • Conference presentations
    • PRNP Genetic testing
    • Infection Control Guidelines
    • Diagnostic tools
    • Publications
      • Articles of interest
    • Healthshare
    • Research
    • Related links
    • Surveillance in Australia
  • Infection Control
    • CJD families and those at risk
    • Completing a screening questionnaire
    • For health care professionals
    • For hospital admission staff
    • Organ and tissue donation
    • Funerals
  • Fundraising
    • CJDSGN Research Funding
    • Donate online
    • Shop
  • News
  • About us
    • Meet the team
    • Purpose and objective
    • Who we represent
    • Services we provide
    • CJD International Support Alliance (CJDISA)
    • Dedication
  • Contact