After conferring with experts in the scientific community (who are are experts in prion disease known as ‘Friends and Advisors’ of the CJD International Support Alliance), Deana and I recommend that we maintain a cautiously optimistic point of view. In the scientific community, it is important to have independent reproduction and testing of research findings – repeatability leads to confidence in findings. This claim has been around for some years and to date there is no evidence of validation by other researchers. What we will say is that there is a great deal of work going on within the research community as we have seen with the human treatment happening in the United Kingdom, the great work that Eric and Sonia are doing and their hopes of a human trial in the near future, and now this claim. We will remain watchful of all the important work that is happening and hopeful for a treatment or cure. Today's media story on this topic. exclusive.multibriefs.com/content/professor-claims-cure-for-cwd-but-others-arent-sure/waste-manag...... See MoreSee Less
The United Sportsmen of Pennsylvania (USP) turned a lot of heads in the hunting community during a press conference at the state capitol in Harrisburg in February when they announced that a cure to Chronic Wasting Disease (CWD) may be close at hand. The group declared that Dr. Frank Bastian of the L...
This may be amazing news!! A protential cure of CWD in deer and Elk that they claim will lead to a cure for CJD. Deana and I are checking with the experts and plan for the CJDISA to put out a statement as soon as we can.
Great to see three of our CJD family members right in the front cheering on the race!! I am sure the champion event was a very successful and wonderful night. Photos to follow. Congratulations to the Heagerty family for another wonderful event that brings families together but also raises much needed funds for prion disease research in memory of Catherine Heagerty. It touches my heart to see how many other CJD families continue to support this event each year...the numbers keep growing. Great effort and thank you to Gail for representing the CJDSGN at this event.
Thank you for to those of you who joined us for our meeting yesterday. in Perth. We hope you left with more knowledge, some hope and a feeling of community. Together we can help our researchers, promote awareness of this rare and always fatal disease and offer mutual support, especially to the new families who will unfortunately come along. Watch this space for details of Team Prion participating in the Perth City2Surf in August and join us to be part of the seaoforange# by joining our CJD family for a united effort promoting aware, better care for patients and less discrimination and delays for 'at risk' patients accessing health care ... See MoreSee Less