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CJD Support Group Network Australia
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News & Events

  • Save the Date – Perth Meeting, 26th November
  • CJD Conference 2022 – Registrations now open
  • Run or Ride for Ronnie – Fundraising Event

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CJDSGN FACEBOOK Page for Updates

CJD Support Group Network

2 days ago

CJD Support Group Network
Less than 3 weeks to go until our 13th Annual National family CJD conference. Please use the link below for free registration. www.cjdsupport.org.au/product-category/tickets/13th-annual-national-cjd-conference/ ... See MoreSee Less
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CJD Support Group Network

2 months ago

CJD Support Group Network
Registration is now open for our 13th Annual National CJD conference which is hosted by the CJD Support Group Network in Australia and is free of charge for all CJD family members and those at increased risk. This is the first face to face meeting since October 2019 so we look forward to seeing you all on Saturday 22nd October at the Jasper Hotel in Melbourne. For genetic family members and anyone wanting to understand more about testing to rule out a genetic cause for your loved ones illness with CJD we will be also hosting a genetic family meeting on Friday afternoon 21st October. Please use the link on the invitation to register on line for the genetic family meeting, all day conference and conference cocktail party. ... See MoreSee Less
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CJD Support Group Network

3 months ago

CJD Support Group Network
The family of Ronnie, who died of genetic prion disease, is organising a fundraising and awareness event to be held on International CJD Awareness Day, 12th November 2022. Registration is open - please see the link below that is now on our website. I any one else would like to organise a similar event on the same day the CJDSGN will assist you with organising that. www.cjdsupport.org.au/product/run-ride-ronnie/ ... See MoreSee Less

Run or Ride for Ronnie – CJD Support Group Network Australia

www.cjdsupport.org.au

© 2022 CJD Support Group Network Australia. The CJDSGN acknowledges the funding provided by the Department of Health that assists towards the cost of this website.Disclaimer Privacy Policy
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CJD Support Group Network

4 months ago

CJD Support Group Network
www.forbes.com/sites/williamhaseltine/2022/06/09/unraveling-hope-for-prion-disease-and-other-prog... ... See MoreSee Less

Unraveling Hope For Prion Disease And Other Progressive Neurodegenerative Diseases

www.forbes.com

Prion diseases are rare, deadly neurodegenerative brain diseases that result from misfolding protein. Recent study encourages the development of antibodies to PrPC to prevent its conversion to PrPSc. ...
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CJD Support Group Network

4 months ago

CJD Support Group Network
Save the date for our Annual National CJD Conference www.cjdsupport.org.au/ ... See MoreSee Less

CJD Support Group Network Australia

www.cjdsupport.org.au

Prion protein monoclonal antibody (PRN100) therapy for Creutzfeldt–Jakob disease: evaluation of a first-in-human treatment programme
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© 2022 CJD Support Group Network Australia.
The CJDSGN acknowledges the funding provided by the Department of Health
that assists towards the cost of this website.
Disclaimer    Privacy Policy

Close Menu
  • What is CJD?
    • Forms of CJD
    • Symptoms of CJD
    • Diagnosing CJD
    • FAQs
    • Fact vs. Fiction
  • We support …
    • CJD family and friends
      • How we can help
      • Request an information package or join our mailing list
      • Family stories
      • Genetic testing
      • Dealing with a diagnosis of CJD
      • What we can expect
      • Palliative care
      • Death with dignity
      • Grief
      • Infection control and funerals
      • Autopsies
      • Contact Us
    • People at “increased risk”
      • Human Pituitary Hormone Recipients
        • Timeline of the Australian hPH program
        • Pituitary hormones initiatives
      • FAQs
      • Contact Us
    • Health care professionals
      • Education program
      • Handbook
      • Contact Us
  • Resources
    • Brochures and fact sheets
    • Information Packages
      • For CJD family members
      • For Health care professionals
    • Conference presentations
    • PRNP Genetic testing
    • Infection Control Guidelines
    • Diagnostic tools
    • Publications
      • Articles of interest
    • Healthshare
    • Research
    • Related links
    • Surveillance in Australia
  • Infection Control
    • CJD families and those at risk
    • Completing a screening questionnaire
    • For health care professionals
    • For hospital admission staff
    • Organ and tissue donation
    • Funerals
  • Fundraising
    • CJDSGN Research Funding
    • Donate online
    • Shop
  • News
  • About us
    • Meet the team
    • Purpose and objective
    • Who we represent
    • Services we provide
    • CJD International Support Alliance (CJDISA)
    • Dedication
  • Contact