Skip to main content
Close Search
CJD Support Group Network Australia
0
Menu
  • What is CJD?
    • Forms of CJD
    • Symptoms of CJD
    • Diagnosing CJD
    • FAQs
    • Fact vs. Fiction
  • We support …
    • CJD family and friends
      • How we can help
      • Request an information package or join our mailing list
      • Family stories
      • Genetic testing
      • Dealing with a diagnosis of CJD
      • What we can expect
      • Palliative care
      • Death with dignity
      • Grief
      • Infection control and funerals
      • Autopsies
      • Contact Us
    • People at “increased risk”
      • Human Pituitary Hormone Recipients
        • Timeline of the Australian hPH program
        • Pituitary hormones initiatives
      • FAQs
      • Contact Us
    • Health care professionals
      • Education program
      • Handbook
      • Contact Us
  • Resources
    • Brochures and fact sheets
    • Information Packages
      • For CJD family members
      • For Health care professionals
    • Conference presentations
    • PRNP Genetic testing
    • Infection Control Guidelines
    • Diagnostic tools
    • Publications
      • Articles of interest
    • Healthshare
    • Research
    • Related links
    • Surveillance in Australia
  • Infection Control
    • CJD families and those at risk
    • Completing a screening questionnaire
    • For health care professionals
    • For hospital admission staff
    • Organ and tissue donation
    • Funerals
  • Fundraising
    • CJDSGN Research Funding
    • Donate online
    • Shop
  • News
  • About us
    • Meet the team
    • Purpose and objective
    • Who we represent
    • Services we provide
    • CJD International Support Alliance (CJDISA)
    • Dedication
  • Contact
  • 0
    was successfully added to your cart.

    Cart

Fundraising

Donate

Make a donation to support CJD Research in Australia or to assist the work of the CJD Support Group Network supporting all Australians affected by CJD and other prion diseases.

Donate

Shop

Buy a CJD Support Group item to help raise awareness and funds. Items start at $2 plus postage.

Shop

News & Events

  • Survey – genetic testing for prion diseases
  • CJDSGN Meeting – Perth
  • The importance of ongoing international surveillance for Creutzfeldt–Jakob disease

Connect with us

  Join our private Facebook Group to communicate with other families

CJDSGN FACEBOOK Page for Updates

CJD Support Group Network

1 month ago

CJD Support Group Network
www.somagnews.com/what-do-we-know-so-far-about-the-mysterious-brain-disease/ ... See MoreSee Less

What Do We Know So Far About The Mysterious Brain Disease? - Somag News

www.somagnews.com

Brain: In recent months, 48 ​​cases of a neurological syndrome of unknown origin have been identified in New Brunswick, Canada. Patients presented diverse
View on Facebook
· Share

Share on Facebook Share on Twitter Share on Linked In Share by Email

CJD Support Group Network

1 month ago

CJD Support Group Network
Here is your chance to help towards a treatment or cure for prion disease. Ionis Pharmaceuticals, a company based in Carlsbad, California US that develops antisense drugs targeting the RNA. In the past, Ionis has successfully developed antisense drugs that treat diseases such as Spinal Muscular Atrophy and TTR Amyloidosis. they are working on doing the same for prion disease.they are currently undertaking a survey on genetic testing for prion diseases (PRNP testing) and we ask anyone from a genetic prion disease family or anyone who has undergone or considered genetic testing to please complete the survey provided in the link below. clarityco.qualtrics.com/jfe/form/SV_eIO0ze2ua5kyT0q?wave=2 Your help would be very much appreciated ... See MoreSee Less

Qualtrics Survey | Qualtrics Experience Management

clarityco.qualtrics.com

The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.
View on Facebook
· Share

Share on Facebook Share on Twitter Share on Linked In Share by Email

CJD Support Group Network

1 month ago

CJD Support Group Network
UPDATE: You can use this same Scheme ID in QUEENSLAND as well.Thank you Kristen Turner in WA for setting this up to raise funds for CJD research in Australia.In Western Australia and Queensland when you recycle with Containers for Change, you receive a 10 cent refund for every eligible container you return. We have registered our own ID, so when this ID is used your money will be donated straight to the CJDSGN! Start recycling WA and Queensland every little bit counts! ... See MoreSee Less

Photo

View on Facebook
· Share

Share on Facebook Share on Twitter Share on Linked In Share by Email

CJD Support Group Network

2 months ago

CJD Support Group Network
In Western Australia and Queensland when you recycle with Containers for Change, you receive a 10 cent refund for every eligible container you return. We have registered our own ID, so when this ID is used your money will be donated straight to the CJDSGN! Start recycling WA and Queensland every little bit counts! ... See MoreSee Less

Photo

View on Facebook
· Share

Share on Facebook Share on Twitter Share on Linked In Share by Email

CJD Support Group Network

2 months ago

CJD Support Group Network
www.prionalliance.org/2021/06/07/mid-year-update-2021/?fbclid=IwAR24tH_2YXOKctGwiIJ9HgkIslThsNU6r... ... See MoreSee Less

Prion Alliance mid-year update 2021

www.prionalliance.org

Prion Alliance is a 501(c)(3) non-profit devoted to funding research towards a treatment or cure for human prion disease.
View on Facebook
· Share

Share on Facebook Share on Twitter Share on Linked In Share by Email

© 2021 CJD Support Group Network Australia.
The CJDSGN acknowledges the funding provided by the Department of Health
that assists towards the cost of this website.
Disclaimer    Privacy Policy

Close Menu
  • What is CJD?
    • Forms of CJD
    • Symptoms of CJD
    • Diagnosing CJD
    • FAQs
    • Fact vs. Fiction
  • We support …
    • CJD family and friends
      • How we can help
      • Request an information package or join our mailing list
      • Family stories
      • Genetic testing
      • Dealing with a diagnosis of CJD
      • What we can expect
      • Palliative care
      • Death with dignity
      • Grief
      • Infection control and funerals
      • Autopsies
      • Contact Us
    • People at “increased risk”
      • Human Pituitary Hormone Recipients
        • Timeline of the Australian hPH program
        • Pituitary hormones initiatives
      • FAQs
      • Contact Us
    • Health care professionals
      • Education program
      • Handbook
      • Contact Us
  • Resources
    • Brochures and fact sheets
    • Information Packages
      • For CJD family members
      • For Health care professionals
    • Conference presentations
    • PRNP Genetic testing
    • Infection Control Guidelines
    • Diagnostic tools
    • Publications
      • Articles of interest
    • Healthshare
    • Research
    • Related links
    • Surveillance in Australia
  • Infection Control
    • CJD families and those at risk
    • Completing a screening questionnaire
    • For health care professionals
    • For hospital admission staff
    • Organ and tissue donation
    • Funerals
  • Fundraising
    • CJDSGN Research Funding
    • Donate online
    • Shop
  • News
  • About us
    • Meet the team
    • Purpose and objective
    • Who we represent
    • Services we provide
    • CJD International Support Alliance (CJDISA)
    • Dedication
  • Contact