In loving memory of Richard Main

Richard Main is many things to many people. Most notably; a loving husband to his wife Robyn for over 35 years, an amazing father to his two sons, West and Austin and a passionate physical and health educator to thousands of kids within the WA secondary schooling system in a career spanning over three decades.

As a man of faith and great integrity, Richard lived by strong family values and was a huge proponent of living an active, healthy lifestyle. Following some uncharacteristically poor tennis results (loss of coordination) vs his son, amongst a few other minor symptoms (minor memory fogginess/general daily fatigue) he was admitted to SJOG Murdoch hospital in mid November 2021 and after several phases of testing, received the very probable diagnosis of Creutzfeldt-Jakob disease (CJD). A rapid decline in mental and physical functionality ensued with Rich passing away just over 4 weeks after being admitted to hospital.

To mark his ongoing legacy, Richard’s eldest son, West and three friends will compete as a team in attempting to swim to Rottnest as part of the annual channel crossing. They will be raising awareness and funds for research into CJD.

Total raised so far to support CJD Research in Australia – 311 donations to total $26,060.00 

Total donated to prion disease research in Australia- $26,060.00
2022 – $26,060.00 allocated to Part A as part of the CJDSGN Memorial Award 2022 in memory of Richard Main, Michael (Mick) Ryan and Vicki Maree Barrington. $70,000.00 awarded to Dr Dhamidhu Eratne, Melbourne HealthPart A – $45,000.00. Project: ‘Building and expanding the clinical, diagnostic, prognostic biomarker and clinical algorithms in symptomatic and genetic Creutzfeldt-Jakob disease (CJD) and other rapidly progressive disorders’.

The CJDSGN guarantees that every cent received will go directly to support the CJD Research Teams in Australia, improvements in diagnostic tools or the work of the CJDSGN in supporting families affected by CJD. Richard’s family will be notified of your donation and consulted on the allocation of funding.

The CJDSGN is a registered charity and will provide you with a tax deductible receipt. We use PayPal’s secure checkout to process our donations. *Please allow or select to return to the CJDSGN website from Paypal to ensure your donation is processed.*


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Donation Total: $100.00 One Time