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CJD Support Group Network Australia
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  • What is CJD?
    • Forms of CJD
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Phone

Call our National toll-free helpline on

1800 052 466

Email

contactus@cjdsupport.org.au

Mail

PO Box 193, Round Corner NSW 2158 AUSTRALIA

Donate

Make a donation to support CJD Research in Australia or to assist the work of the CJD Support Group Network supporting all Australians affected by CJD and other prion diseases.

Donate

Shop

Buy a CJD Support Group item to help raise awareness and funds. Items start at $2 plus postage.

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News & Events

  • Fundraising Event – CJD ‘Fluffy Charity Ball’, Brighton VIC
  • Memorial Wall 2022
  • Register – Perth Meeting, 26th November

Connect with us

  Join our private Facebook Group to communicate with other families

CJDSGN FACEBOOK Page for Updates

CJD Support Group Network

6 months ago

CJD Support Group Network
Educating the GP community!!!!!!CJDSGN committee members Dr Debra Scott and Gail Glasscock manned a booth last Friday, Saturday and Sunday at the General Practice Conference and Exhibition (GPCE) at the Melbourne convention centre. This event was attended by approximately 800 GPs and our girls passed out the brochures and our handbook 'Caring for a CJD patients' and talked to as many as possible educating them about the disease, the incidence of CJD in Australia and promoting awareness of the CJDSGN!!!!! Dr Scott is the palliative care and patient care advisor for the CJDSGN and her experience with CJD started when, as a GP, she cared for a CJD patient who remained at home. She has gone on to specialise as a palliative care doctor and is very passionate about educating and improving knowledge of CJD amongst her colleagues. Gail lost her husband to CJD so was able to bring her personal story to those they spoke to over this weekend. What a great way to honour International CJD Awareness Day by education and promoting awareness to clinicians. Plenty of free giveaway awareness products so they remember us!!! ... See MoreSee Less

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CJD Support Group Network

6 months ago

CJD Support Group Network
International CJD Awareness Day!!!! Remembering loved ones lost to CJD who live on in our hearts and memories. ... See MoreSee Less

Memorial Wall 2022 – CJD Support Group Network Australia

www.cjdsupport.org.au

© 2022 CJD Support Group Network Australia. The CJDSGN acknowledges the funding provided by the Department of Health that assists towards the cost of this website.Disclaimer Privacy Policy
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CJD Support Group Network

7 months ago

CJD Support Group Network
Don't forget 1 more sleep to International CJD Awareness Day 🧡Get down to your local parkrun, register your event and help spread Awareness of this terrible disease we have all been touched by.Post your pics on our Facebook page, so we can see all your beautiful faces. ... See MoreSee Less
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CJD Support Group Network

7 months ago

CJD Support Group Network
12th November - International CJD Awareness Day - register your event or a fundraiser or make a donation to support prion disease research in Australia ... See MoreSee Less

International CJD Awareness Day 2022 – CJD Support Group Network Australia

www.cjdsupport.org.au

© 2022 CJD Support Group Network Australia. The CJDSGN acknowledges the funding provided by the Department of Health that assists towards the cost of this website.Disclaimer Privacy Policy
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CJD Support Group Network

7 months ago

CJD Support Group Network

Photo

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© 2023 CJD Support Group Network Australia.
The CJDSGN acknowledges the funding provided by the Department of Health
that assists towards the cost of this website.
Disclaimer    Privacy Policy

Close Menu
  • What is CJD?
    • Forms of CJD
    • Symptoms of CJD
    • Diagnosing CJD
    • FAQs
    • Fact vs. Fiction
  • We support …
    • CJD family and friends
      • How we can help
      • Request an information package or join our mailing list
      • Family stories
      • Genetic testing
      • Dealing with a diagnosis of CJD
      • What we can expect
      • Palliative care
      • Death with dignity
      • Grief
      • Infection control and funerals
      • Autopsies
      • Contact Us
    • People at “increased risk”
      • Human Pituitary Hormone Recipients
        • Timeline of the Australian hPH program
        • Pituitary hormones initiatives
      • FAQs
      • Contact Us
    • Health care professionals
      • Education program
      • Handbook
      • Contact Us
  • Resources
    • Brochures and fact sheets
    • Information Packages
      • For CJD family members
      • For Health care professionals
    • Conference presentations
    • PRNP Genetic testing
    • Infection Control Guidelines
    • Diagnostic tools
    • Publications
      • Articles of interest
    • Healthshare
    • Research
    • Related links
    • Surveillance in Australia
  • Infection Control
    • CJD families and those at risk
    • Completing a screening questionnaire
    • For health care professionals
    • For hospital admission staff
    • Organ and tissue donation
    • Funerals
  • Fundraising
    • CJDSGN Research Funding
    • Donate online
    • Shop
  • News
  • About us
    • Meet the team
    • Purpose and objective
    • Who we represent
    • Services we provide
    • CJD International Support Alliance (CJDISA)
    • Dedication
  • Contact