CJD Awareness

CJD Support Group Network

3 weeks ago

Thank you again to our friends at the CJD Foundation for allowing us to share another of their virtual presentations. Professor Brian Appleby, who many of you know as he is a regular speaker at our annual conference in Melbourne, is interviewing Dr Anne Smith from Ionis who talks about the hope for clinical trials late 2021 of ASO. Professor Steven Collins and I had a meeting with Anne and also Eric Minikel and Sonia Vallabh at Prion 2019 in Edmonton and did indicate our interest in a trial happening in Australia. Understandably the trials will be held where ever Ionis believe is most suitable but at least we have lodged our interest. www.youtube.com/watch?v=3yJyWvuGscQ&feature=youtu.be&fbclid=IwAR0cadWRNKj08pwAn4W1NSPBRKvrPNM0trQ... ... See MoreSee Less

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CJD Support Group Network

3 weeks ago

Thank you to Debbie Yobs and the team at CJD Foundation US for agreeing for us to post some of the virtual 2020 CJD Conference sessions. Today we would like to present Dr Simon Mead from the Prion Unit in London. The presentation is titled 'Genetic prion disease and how genetics may help us understand sporadic CJD' I understand Simon may also provide an update on PRN100 drug study.
www.youtube.com/watch?v=L4-TFl692Fk&feature=youtu.be&fbclid=IwAR2WBe4JZkBR1_C2UeEUkHfRVu6no_i9h_h... ... See MoreSee Less

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