CJD Support Group Network (CJDSGN)

The CJDSGN offers support, information and assistance for family members and friends of patients suffering with suspected CJD and other prion disease and for those at increased risk of developing CJD.

The primary goal of the CJDSGN is to be part of your support system and assist you in anyway that we can.

To receive an information package for families, ongoing support or assistance with an infection control issue:

Call our National Toll Free Helpline- 1800 052 466 or email: contactus@cjdsupport.org.au

If we are not available we will return your call or email on the same day so please leave us a message.

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The CJDSGN is a leading source of information and guidance for Health Professionals working with Australians affected by CJD and other Prion diseases. Health Care Professionals are welcome to registry to join our 'Interested Party List' to receive ongoing information.

Information Packages and in-service presentations are available free of charge on request.

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FUNDRAISING EVENTS FOR MAY 2013 - Come along and help support the Australian CJD Research Teams trying to find a treatment or cure for CJD!

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Saturday 4th May - 3pm at Everton Park, Brisbane. Your hosts Jerry and Kathy - an afternoon of fun followed by a BBQ - cost $25 a head.

Call 1800 052466 or email contactus@cjdsupport.org.au if you would like to receive an invitation with details.

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PLEASE SUPPORT HOLLY WHO IS SHAVING HER HEAD TO RAISE MONEY FOR CJD RESEARCH IN MEMORY OF HER FRIEND MARGIE - Saturay 11 May in Brisbane, Qld.

Check out the face book page - SHAVING MY HEAD TO RAISE MONEY FOR CJD - PLEASE DONATION! - Donations can be made below or by calling 1800 052466.

All donations made to support Holly will be acknowledged with a tax deductible receipt.

 

PURCHASE AN AWARENESS RIBBON -

call 1800 052466$2.00 each purchase on line

 

 

 

 

Welcome to the CJD Support Group Network website.

The CJD Support Group Network offers support to all Australians affected by Creutztfeldt-Jakob Disease (CJD) or other prion diseases.

The CJDSGN provides information and support to families who are caring for, or coming to terms with the loss of a loved one to CJD and assists people who are ‘at increased risk of CJD’ by promoting an environment in the health care setting where patients feel comfortable and confident of receiving equity of care when disclosing their ‘at risk of CJD’ status.

The CJDSGN is committed to an advococy role on behalf of individuals and families affected by CJD and other prion diseases ,an ongoing national educational and awareness program, networking with the health care professionals , linking family members together for mutual support and continued assistance tofamilies keen to raise much needed funds for research into CJD in Australia.

The CJDSGN is a founding member of the International CJD Support Alliance (CJDISA) Member organisations of the CJDISA work together as an international coalition on behalf of patients and families affected by prion disease the world over.

 

 

BUY A CJD BRACELET TO SUPPORT FUNDRAISING purchase on line

Support our fundraising for CJD Research in Australia by purchasing one of our ‘Love and Star Bracelets in loving memory of the special people lost to CJD. 

Money raised by the sale of our bracelets helps to maintain our fundraising account so that every cent donated by families and friends can go directly into CJD Research at the University of Melbourne or the University of Sydney.

 

CJDSGN acknowledges the funding provided by the Department of Health and Ageing (DoHA) for the provision and maintenance of this website. The CJDSGN asserts that apart from providing the funding the DoHA is not involved in anyway in the compilation of this website and the views expressed herein.