CJD Support Group Network (CJDSGN)

National Toll Free number: 1800 052466
Email us: contactus@cjdsupport.org.au

Welcome to the CJD Support Group Network website.

CJD Support Group Network offers support to all Australians affected by Creutztfeldt-Jakob Disease (CJD) or other prion diseases.

The CJDSGN provides assistance to families who are caring for, or coming to terms with the loss of a loved one to CJD, by providing information and contact with families with similar experiences.

The CJDSGN provides support and assistance to people who are ‘at risk of CJD’ by promoting an environment in the health care setting where patients feel comfortable and confident of receiving equity of care when disclosing their ‘at risk of CJD’ status.

The CJDSGN is committed to ongoing educational and awareness programs.

The CJDSGN will continue to support families to raise much needed funds for research into CJD in Australia.

The CJDSGN is a member of the International CJD Support Alliance.

We work together as an international coalition on behalf of patients and families affected by prion disease the world over.

CJDSGN acknowledges the funding provided by the Department of Health and Ageing (DoHA) for the provision and maintenance of this website. The CJDSGN asserts that apart from providing the funding the DoHA is not involved in anyway in the compilation of this website and the views expressed herein.

Register as a member of the CJD Support Group Network

Membership to the CJDSGN is free of charge.

Family and friends of CJD patients and people at risk of CJD are all eligible to join the CJDSGN.

Health care professionals or others can request inclusion on our electronic ‘Interested Party’ List.

To register as a member:
Contact the Toll Free Number 1800 052466

Email contactus@cjdsupport.org.au

Please provide
Your name and address
A contact phone number

I am a family member
I am a family friend
I am an ‘at risk of CJD’ person
I am a family member of an ‘at risk of CJD’ person

I would like to join the interested party email list to receive information and newsletters