CJD Support Group Network (CJDSGN)
The CJDSGN offers support, information and assistance for family members and friends of patients suffering with suspected CJD and other prion disease and for those at increased risk of developing CJD.
The primary goal of the CJDSGN is to be part of your support system and assist you in anyway that we can.
To receive an information package for families, ongoing support or assistance with an infection control issue:
Call our National Toll Free Helpline- 1800 052 466 or email: contactus@cjdsupport.org.au
If we are not available we will return your call or email on the same day so please leave us a message.
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The CJDSGN is a leading source of information and guideance for Health Professionals working with Australians affected by CJD and other Prion diseases. Health Care Professionals are welcome to registry to join our 'Interested Party List' to receive ongoing information.
Information Packages and in-service presentations are available free of charge on request.
Standing at an impressive 5,895 metres, Mt Kilimanjaro is the highest mountain in Africa and her country’s highest point. Located in northern Tanzania, she is actually a volcano in geology – 3 volcanoes in fact, all fused together– with a base diameter of more than 40 miles.
Elle and her sister Andrina both live and work in London but lost their father , Robert, to sporadic CJD in Melbourne, Austalia in May 2012. Together with 7 other friends they are climbing Mt Kilimanjaro to raise money in July 2012.
75% of donations will go the our network and will provide a grant to support the prion research work of Dr Vicki Lewis In Melbourne. 25% of donations will go to the CJD Support Network UK to assist them with their valuable work.
Elle and Andrina would appreciate the support of their family and friends in Australia and ask those of you who understand the devastation of losing a loved one to CJD to support this very adventuous and challenging way to raise money and promote aware of CJD and other prion diseases.
All donations made to the CJD Support Group Network to support this climb will be acknowledged by a tax deductible receipt issued by the University of Melbourne and will be added to the money raised in UK to help the girls achieve their fundraising goal.
TO READ MORE click here
DONATIONS CAN BE MADE BY PAYPAL OR BY CALLING 1800 052466
5th annual national cjd conference - melbournE BRAIN CENTRE
Saturday 20th october 2012
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Welcome to the CJD Support Group Network website.
The CJD Support Group Network offers support to all Australians affected by Creutztfeldt-Jakob Disease (CJD) or other prion diseases.
The CJDSGN provides information and support to families who are caring for, or coming to terms with the loss of a loved one to CJD and assists people who are ‘at increased risk of CJD’ by promoting an environment in the health care setting where patients feel comfortable and confident of receiving equity of care when disclosing their ‘at risk of CJD’ status.
The CJDSGN is committed to an advococy role on behalf of individuals and families affected by CJD and other prion diseases ,an ongoing national educational and awareness program, networking with the health care professionals , linking family members together for mutual support and continued assistance tofamilies keen to raise much needed funds for research into CJD in Australia.
The CJDSGN is a founding member of the International CJD Support Alliance (CJDISA) Member organisations of the CJDISA work together as an international coalition on behalf of patients and families affected by prion disease the world over.
Make a donation to CJD Research in Australia
To request personalised envelopes for donations in lieu of flowers at a funeral.
All donations will go directly to CJD research in memory of your loved one.
Contact 1800 052466
I would like to make a tax deductible donation to support the CJD Research Teams in Australia.
BUY A CJD BRACELET TO SUPPORT FUNDRAISING cjdevents.org
Support our fundraising for CJD Research in Australia by purchasing one of our ‘Love and Star Bracelets in loving memory of the special people lost to CJD.
Money raised by the sale of our bracelets helps to maintain our fundraising account so that every cent donated by families and friends can go directly into CJD Research at the University of Melbourne or the University of Sydney.
CJDSGN acknowledges the funding provided by the Department of Health and Ageing (DoHA) for the provision and maintenance of this website. The CJDSGN asserts that apart from providing the funding the DoHA is not involved in anyway in the compilation of this website and the views expressed herein.