CJD Support Group Network (CJDSGN)
For family members and friends needing information and support and for those at increased risk of developing CJD.
Membership is free for all Australians affected by CJD or prion disease.
Health care professionals are welcome to join our 'Interested Party' List.
To register or find out more click on 'Become a Member' above.
CONTACT US: National Toll Free number- 1800 052 466
email: contactus@cjdsupport.org.au
Welcome to the CJD Support Group Network website.
The CJD Support Group Network offers support to all Australians affected by Creutztfeldt-Jakob Disease (CJD) or other prion diseases.
The CJDSGN provides information and support to families who are caring for, or coming to terms with the loss of a loved one to CJD and assists people who are ‘at increased risk of CJD’ by promoting an environment in the health care setting where patients feel comfortable and confident of receiving equity of care when disclosing their ‘at risk of CJD’ status.
The CJDSGN is committed to an advococy role on behalf of our members, ongoing educational and awareness programs, networking withthe health care professionals who can assist members and continuing support or families keen toraise much needed funds for research into CJD in Australia.
The CJDSGN is a founding member of the International CJD Support Alliance work together as an international coalition on behalf of patients and families affected by prion disease the world over.
CJDSGN acknowledges the funding provided by the Department of Health and Ageing (DoHA) for the provision and maintenance of this website. The CJDSGN asserts that apart from providing the funding the DoHA is not involved in anyway in the compilation of this website and the views expressed herein.
Make a donation to CJD Research in Australia
BUY A CJD BRACELET TO SUPPORT FUNDRAISING
Support our fundraising for CJD Research in Australia by purchasing one of our ‘Love and Star Bracelets in loving memory of the special people lost to CJD.
Money raised by the sale of our bracelets helps to maintain our fundraising account so that every cent donated by families and friends can go directly into CJD Research at the University of Melbourne or the University of Sydney.