I'm in the US, but there's not a lot of places to ask... *PHYSICIAN & INFORMATION REFERRAL REQUEST* I'm wondering if anyone has heard of a suspected link between vaccines and CJD (Creutzfeldt-Jakob Disease) or vCJD? I've been researching possible ways I could have been exposed to Mad Cow or other Prion Disease, and I found this website that explains how infected bovine materials were used to manufacture vaccines: justice4andy.com/whats-to-blame/vaccines Last year I had my genome tested for research through #GenesForGood and my results came back with #Prion gene mutations, and 35 other gene mutations associated with Prion Diseases. I was vaccinated 4 times more than the recommended vaccine schedule due to traveling with the military/government to foreign countries from 1988-1997 (mom kept losing the shot records), and certifying as an EMT 2006-7. I also lived in England during the Mad Cow outbreak, then in Germany where the U.S. military commissaries were supplied beef from the UK. Two of my children had severe vaccine reactions, so I refused continuing and my third is unvaccinated. I have been unsuccessful getting any physicians to do a blood draw for me to get the official diagnostic test through the National Prion Surveillance Center; my PCP dropped me when i told him the results and demanded a referral to am infectious disease specialist & geneticist. I have an email from the Center with the requisition paperwork for the draw. The CDC told me to contact the local Health Department. The Health Department Infectious Disease nurse refuses to acknowledge the public health risk until I'm actually diagnosed. Both my PCP and the RN are in violation of the CDC reporting guidelines for SUSPECTED exposure/infection of CJD. I am seeking information for any Boise, Idaho area physicians that are 1) Non-Vaxxed friendly, 2) Accept Medicaid, and 3) are not afraid to take a patient diagnosed with 3 rare genetic conditions (Ehlers-Danlos, Dysautonomia, & Gastroparesis) and a possible terminal illness. If there's one willing to just do the blood draw, but won't take me as a patient, I'm fine with that also. I MUST find out what type of Prion Disease I have before it kills me, so I can get my children tested!! Thank you in advance for any information anyone can give. #ZebrasOnParade ... See MoreSee Less
This year's 2017 NSW fundraiser is on Saturday 19 August 2017 at the Casula Powerhouse Arts Centre.
Organised by Sam Larielle, The CJDSGN Ria Ball will be raising funds for CJD research in Memory of Ria Larielle who passed away in June last year. Enjoy a 3 course meal, bid in the silent auction and enjoy some great entertainment which is sure to be a great night out.
Congratulations to the Heagerty family for organising such a successful fundraising event. It certainly was a lengendary night that raised money for CJD research in Australia and promoted awareness of this rare and always fatal disease that steals a loved one from about 40 families each and every year in Australia. Given the wonderful success of last night Mick Heagerty announced that this will be an annual event. Every cent raised will go to support a research project as a memorial donation in memory of Cathryn Heagerty. Thank you to the football legends who had 200 people in fits of laughter with their entertaining stories. Better photos to come! ... See MoreSee Less
This Friday night's fundraising event to raise money for CJD research in Australia 'Night with the Champions' is sold out. Congratulations to the Heagerty family and good luck on the night.
Friday night is a sell out!
A little teaser of items that you can expect to see in the auction
Dane Swan - This piece is personally autographed by the Collingwood legend. Highlighting key career achievements such as winning the 2011 Brownlow Medal. (certificate of authenticity provided)
John Coleman / d'Arcy W. Doyle framed print - A very rare piece. Limited edition and personally autographed print by Doyle, of the legendary forward John Coleman. Coleman's signature sits separately below the print amongst several photographs. Authenticity provided for both signatures.
Victorian Jumper - Autographed by Ron Barassi, John Nicholls, Bobby Skilton, Lou Richards, Kevin Murray, Dale Weightman, Dermott Brereton, Gary Hocking, Stephen Silvagni and many more (certificate of authenticity provided)
Usain Bolt Framed Piece - Personally autographed by the champion runner. (certificate of authenticity provided)
Bally - One of the collection of prints & pop artwork.
There will be other items available for both the live and silent auctions. Also there will be some raffles as well as door prizes Make sure you bring your wallet!! See you on Friday night