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Clinical trials general information

Understanding Clinical Trials

By Clinical trials general information, Research

Please find below links to some general information on clinical trials which may be helpful in the lead-up to the commencement of clinical trials for prion disease:

U.S. Department of Health & Human Services – Participating in Human Research
You may  find the videos to be very approachable, and they have a very handy PDF with questions that people should consider asking a study investigator.  Many of their resources are available in English and Spanish, which is a nice bonus!

U.S. Food & Drug Administration  – Clinical Trials: What Patients Need to Know 
Explanations are very basic, but include special pages on Informed Consent and explain the difference between a trial and medical treatment which is very helpful, especially for communities like ours that are relatively new to trials.

U.S. National Institute of Health – Clinical Research Trials and You
This site has some great tools as well, although they may be a little bit more technical that the Health & Human Services ones.