From abc news:
Trish's family knew something was wrong in late 2019 when she began struggling to articulate herself."She started missing words, which was very unlike her," he said.The 64-year-old Hobart woman, whose family have requested their surname be withheld, was diagnosed with Creutzfeldt-Jakob disease, a rare degenerative and fatal disorder.
Educating the GP community!!!!!!CJDSGN committee members Dr Debra Scott and Gail Glasscock manned a booth last Friday, Saturday and Sunday at the General Practice Conference and Exhibition (GPCE) at the Melbourne convention centre. This event was attended by approximately 800 GPs and our girls passed out the brochures and our handbook 'Caring for a CJD patients' and talked to as many as possible educating them about the disease, the incidence of CJD in Australia and promoting awareness of the CJDSGN!!!!! Dr Scott is the palliative care and patient care advisor for the CJDSGN and her experience with CJD started when, as a GP, she cared for a CJD patient who remained at home. She has gone on to specialise as a palliative care doctor and is very passionate about educating and improving knowledge of CJD amongst her colleagues. Gail lost her husband to CJD so was able to bring her personal story to those they spoke to over this weekend. What a great way to honour International CJD Awareness Day by education and promoting awareness to clinicians. Plenty of free giveaway awareness products so they remember us!!! ... See MoreSee Less
Don't forget 1 more sleep to International CJD Awareness Day 🧡Get down to your local parkrun, register your event and help spread Awareness of this terrible disease we have all been touched by.Post your pics on our Facebook page, so we can see all your beautiful faces. ... See MoreSee Less