From abc news:
Trish's family knew something was wrong in late 2019 when she began struggling to articulate herself."She started missing words, which was very unlike her," he said.The 64-year-old Hobart woman, whose family have requested their surname be withheld, was diagnosed with Creutzfeldt-Jakob disease, a rare degenerative and fatal disorder.
The CJDSGN is pleased to share that a new Ionis prion disease clinical trial site has been added in Spain. This is the second site outside of the United States (Alberta Canada was the first) and the 4th site to open. Please visit our CJDISA website for details cjdisa.com/clinical-trial-update-for-prion-diseases/Additional sites, including sites in countries including a site in Australia will be rolled out over the coming weeks/months. We will continue to provide updates as information becomes available.You can also visit clinicaltrials.gov site using the following link for updates on the Ionis prion disease clinical trial, including new site locations. clinicaltrials.gov ... See MoreSee Less
January 2024 As of January 20, 2024, the UCLA Neurology Clinic in Los Angeles, California, United States has been added as the next prion disease human clinical trial site. Please email PrionDisease@c...