From abc news:
Trish's family knew something was wrong in late 2019 when she began struggling to articulate herself."She started missing words, which was very unlike her," he said.The 64-year-old Hobart woman, whose family have requested their surname be withheld, was diagnosed with Creutzfeldt-Jakob disease, a rare degenerative and fatal disorder.
Registration is now open for our 13th Annual National CJD conference which is hosted by the CJD Support Group Network in Australia and is free of charge for all CJD family members and those at increased risk. This is the first face to face meeting since October 2019 so we look forward to seeing you all on Saturday 22nd October at the Jasper Hotel in Melbourne. For genetic family members and anyone wanting to understand more about testing to rule out a genetic cause for your loved ones illness with CJD we will be also hosting a genetic family meeting on Friday afternoon 21st October. Please use the link on the invitation to register on line for the genetic family meeting, all day conference and conference cocktail party. ... See MoreSee Less
The family of Ronnie, who died of genetic prion disease, is organising a fundraising and awareness event to be held on International CJD Awareness Day, 12th November 2022. Registration is open - please see the link below that is now on our website. I any one else would like to organise a similar event on the same day the CJDSGN will assist you with organising that. www.cjdsupport.org.au/product/run-ride-ronnie/... See MoreSee Less
Prion diseases are rare, deadly neurodegenerative brain diseases that result from misfolding protein. Recent study encourages the development of antibodies to PrPC to prevent its conversion to PrPSc. ...