From abc news:
Trish's family knew something was wrong in late 2019 when she began struggling to articulate herself."She started missing words, which was very unlike her," he said.The 64-year-old Hobart woman, whose family have requested their surname be withheld, was diagnosed with Creutzfeldt-Jakob disease, a rare degenerative and fatal disorder.
We have now ready the updated version of our memorial wall in memory of so many lost to CJD and other prion diseases in Australia. The next update will be for our conference in November so if you want to submit a photo and have not done so already please email firstname.lastname@example.org Sadly this memorial wall continues to grow........https://www.cjdsupport.org.au/memorial-wall-2023/ ... See MoreSee Less
You are invited to attend one ofthe Queensland meetings of theCJD Support Group NetworkHosted by Suzanne Solvyns and David Ralston,CJD Support Group Network (CJDSGN)BRISBANE MEETINGSaturday 30th September, 20231pm - 5pmAfternoon tea will be providedMantra South Bank Brisbane161 Grey Street, BrisbaneTOOWOOMBA MEETINGSunday 1st October, 20232pm - 5pmAfternoon tea will be providedQuest Toowoomba133 Margaret Street, ToowoombaWe will be providing an update on studies on improved diagnostics, blood markers and potential treatment or cure.GUEST SPEAKERDr Christiane StehmannAustralian National CJD Registry (ANCJDR) We hope that many of you can attend as it is important to be together to share stories and support one another.Please register your attendancevia the CJDSGN website: www.cjdsupport.org.au/qld-rego/RSVP by Monday 25th September 2023 ... See MoreSee Less
If you would like an Australian loved one lost to CJD to be added to the Run 4 CJD T shirts. Please email to email@example.com by 5pm this Friday 8th September. To donate to support this fundraising event and support Matty and his team of 10 running from Parliament House in Canberra 7th October and arriving in Warrnambool Victoria on Saturday 14th october please donate below. T shirts will be avaiable via our online shop and we will keep you posted when you can purchase. Donations will go to the CJDSGN to support prion disease research in Australia. Big event planned for Warrnambool on Saturday afteroon 14th October so save that date if you live in the area. www.gofundme.com/f/run-for-cjd-from-canberra-to-warrnambool-950km?member=28916539&sharetype=teams...... See MoreSee Less